This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed Jun 19, 2013 12:12 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 4 posts ] 
Author Message
 Post subject: 3 month passed
PostPosted: Sat Mar 19, 2011 10:35 am 
Offline
Getting to Know You...
User avatar

Joined: Fri Aug 20, 2010 3:00 pm
Posts: 20
Location: new jersey US
i had my procedure done on december 28 last year. i don't know if someone has anything like i have. My condition may change several times a day: from very bad to almost normal and some day i can even lift my legs to walk (using walker as usual - because of my balance problem) but easier and my legs feel almost normal.
Sometimes i feel ok whole day, next day i feel so week and bad - i feel pain in my legs and can't bend it.
I'm very confused - i don't understand what is happening with my body.
:?:

_________________
hope for the best, be ready for worst


Top
 Profile  
 
 Post subject:
PostPosted: Sat Mar 19, 2011 10:49 am 
Offline
Family Elder
User avatar

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 380
Location: Summerland. BC Canada
i think you need to realize when you do something physical, your body is reacting with pain and stiffness. if you are slowly moving forward, 2 steps, then 1 back, or maybe 2 back some days, but still forward, however slow...its the time to give in with rest and peace of mind that this is your process and give yourself the time its going to take to heal to whatever level you attain.
all in all, it sounds like you just need to accept your process is slow but its still forward...

_________________
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia


Top
 Profile  
 
 Post subject:
PostPosted: Mon Mar 21, 2011 6:29 am 
Offline
Family Elder
User avatar

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 173
Location: USA
You sound like so many of us. I hope it helps to know that you are in good company! You sound a little more impaired than I was before my treatment(s).
Please check out my blog to see all of my ups and downs: www.myliberationadventure.blogspot.com

Hang in there and try to do some rehab if you are able!
Nicole

_________________
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com


Top
 Profile  
 
 Post subject: Valves
PostPosted: Mon Mar 21, 2011 11:12 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 23, 2010 4:00 pm
Posts: 211
ykonstan

I've had the same issue for years. My symptoms can change every 10 minutes or less. This clearly isn't the description that applies to "relapsing'remitting" MS.

But it sure goes a long way to point to a problem with one or more valves. For the last six years, usually, I can barely walk because of the stiffness and balance problems I have.

Except for the 30 second to 4 minute intervals when I can walk perfectly -- no stiffness or balance issues at all!

When you were treated, did the doc treat any valves? If not, try again. That's what happened to me. I was undertreated. I should have been able to waltz out the door, but the IR refused my request to treat any valve problems he found. What a waste of time, money and life.

This time, I'll have the luxury of choosing someone who has stayed current on the latest thinking.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 4 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Passed the paper along

whyRwehere

2

816

Thu Sep 03, 2009 1:31 am

whyRwehere View the latest post

There are no new unread posts for this topic. Hollys Father Passed Away

[ Go to pageGo to page: 1, 2 ]

jerkbutt

16

2362

Fri Jul 02, 2010 10:30 pm

Cece View the latest post

There are no new unread posts for this topic. Steve M - 18 months have passed

mormiles

9

1874

Fri Apr 29, 2011 1:13 pm

mormiles View the latest post

There are no new unread posts for this topic. a member of the CCSVI community has passed

[ Go to pageGo to page: 1, 2 ]

Cece

27

1273

Tue Aug 14, 2012 7:45 am

Cece View the latest post

There are no new unread posts for this topic. Clive Burr, ex Iron Maiden, passed away

frodo

2

297

Fri Apr 26, 2013 2:23 am

frodo View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum