This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 18, 2013 3:35 pm

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 3 of 3
  [ 36 posts ]  Go to page Previous  1, 2, 3
  Print view Previous topic | Next topic 
Author Message
scorpion
 Post subject: Re: Thanks CaptBoo
PostPosted: Sat Mar 26, 2011 7:47 am 
Offline
Family Elder
User avatar

Joined: Wed Nov 05, 2008 4:00 pm
Posts: 1323
MarkW wrote:
Thanks your info CaptBoo. You have given the correct level of detail to describe trends in your MS over a significant period of time. The treatments for stenoses are changing so the method used historically on you is personal to you, say nothing. Six month symptom trends are not usually taken to be placebo or normal variation in MS by experts. Please ignore the naysayer Scorpion and do not give details. In MS the overall trend is invariably downwards but not for you, great news.

Kind regards,

MarkW


The only naysayers are people like you who come on here pretending to have MS. Anyone with a bit of common sense would understand people with MS want new treatments and would be happy that something as simple as getting their veins open would relieve some symptoms of MS. It is obvious for some of you not being proven wrong is more important then getting to the truth or having a decent discussion about CCSVI and that is a shame. The message seems to be pretty much be if you have MS and believe that fixing CCSVI is the answer you are embraced and given support while the "naysayers"(whatever that means) can pretty much go to hell. I swear some of you act like when someone says something critical about CCSVI that they are attacking your mama or something. It is a theory folks, that is all.No matter what I or anyone else on here think about CCSVI research will move forward and that is a good thing, right? Geeeesssh. Capt. Boo, I am glad you have had relief from your symptoms and I hope they continue as I would wish for ANYONE with MS.
Top
 Profile  
 
Cece
 Post subject:
PostPosted: Sat Mar 26, 2011 7:49 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
congrats CaptBoo :)
Top
 Profile  
 
thornyrose76
 Post subject:
PostPosted: Sat Mar 26, 2011 12:23 pm 
Offline
Family Elder
User avatar

Joined: Mon Nov 23, 2009 4:00 pm
Posts: 462
It's very encouraging Capt Boo. :)
Top
 Profile  
 
Drury
 Post subject:
PostPosted: Sun Mar 27, 2011 8:53 pm 
Offline
Family Elder
User avatar

Joined: Sun Mar 28, 2010 3:00 pm
Posts: 237
Great news CaptBoo!!
Top
 Profile  
 
Cece
 Post subject: Re: Thanks CaptBoo
PostPosted: Sun Mar 27, 2011 9:30 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
scorpion wrote:
I swear some of you act like when someone says something critical about CCSVI that they are attacking your mama or something.

Hmmm, it depends on what the criticism is and if it is constructive or cutting, but you have a point, scorpion. I am invested in CCSVI, emotionally and physically now that I've had the procedure done. :)
Quote:
It is a theory folks, that is all.

A theory, a political movement, a salvation, a promising new treatment, a restoration of what has been lost...it is different things to different people, isn't it?
Quote:
No matter what I or anyone else on here think about CCSVI research will move forward and that is a good thing, right? Geeeesssh. Capt. Boo, I am glad you have had relief from your symptoms and I hope they continue as I would wish for ANYONE with MS.

I agree with this, relief is huge, and MS is awful.
Top
 Profile  
 
Trish317
 Post subject:
PostPosted: Mon Mar 28, 2011 9:40 am 
Offline
Family Elder
User avatar

Joined: Sat Sep 06, 2008 3:00 pm
Posts: 357
Location: Rhode Island
Best wishes for continued improvements, Capt.
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 3 of 3
  [ 36 posts ]  Go to page Previous  1, 2, 3

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Who is online

Users browsing this forum: EJC

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: