Dr. Makris 5th procedure

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Dr. Makris 5th procedure

Postby anamishguy » Tue Mar 22, 2011 6:20 pm

I had my procedure today. 75% stenosis on the left and 50% on the right. Azygous and illiac are ok. Resting for a few days and then I'll be better able to tell if I have improvements. I would highly recommend Dr. Makris and all of his staff at Chicago Access center.
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Postby AlmostClever » Tue Mar 22, 2011 6:24 pm

Congrats! Stay in bed now and take it easy!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby Cece » Tue Mar 22, 2011 6:41 pm

Congrats, anamishguy!! I was wondering if we'd hear your name soon!
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Postby soapdiva884 » Tue Mar 22, 2011 7:58 pm

Yaaaaaaaaay.............here's to really favorable results. Rest!
Boyfriend dx'd 6-6-06!!! RRMS............CCSVI procedure done on Nov. 13, 2010 and March 7, 2011 by Dr. Sclafani!
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Postby Donnchadh » Wed Mar 23, 2011 12:31 am

Great! Rest up and drink lots of water.

You can give a complete report later, :wink:

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
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Postby civickiller » Wed Mar 23, 2011 12:52 am

does anyone know if theres a website that gives further information about Dr Markis procedure ?
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Postby Donnchadh » Wed Mar 23, 2011 5:49 am

civickiller wrote:does anyone know if theres a website that gives further information about Dr Markis procedure ?


Dr. Makris is following Dr. Sclafani's procedure method, having been trained by the Brooklyn maestro.

More here:

http://www.thisisms.com/ftopic-15090-0.html

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
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Postby rusty2 » Tue Mar 29, 2011 10:05 am

Let us know how you are doing :D
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Postby anamishguy » Wed Mar 30, 2011 1:50 pm

rusty2 wrote:Let us know how you are doing :D


Before my procedure my right leg would feel like a log after working all day and then taking a short walk. I went to the grocery after work and then came home and walked about a half mile and the leg still felt good. I still am having fatigue, but have been told that the Arixtra (blood thinner) can cause that. I am hoping in another week and a half I will be able to report that the fatigue is gone. I also walked heel to toe with no shoes about 20 feet the other day. I had some trouble with that prior to my procedure. I will update if I have any changes before I am finished with the blood thinner.
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Postby rusty2 » Fri Apr 01, 2011 11:45 am

How wonderful! :lol:
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Postby anamishguy » Mon Apr 18, 2011 2:03 pm

I had my follow up 1 month with Dr. Makris today. My jugulars are flowing normally. I was able to walk 1 mile last week with no problem. I walked .6 of a mile last night on the treadmill at the hotel and then did .25 miles on the elliptical and then a mile on the recumbent bike and still walked without feeling like my leg was dragging. My fatigue is not much better, but I am able to get thru the day without any drugs besides the aspirin and some caffeine. He is very excited about CCSVI and it shows.
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Postby newlywed4ever » Mon Apr 18, 2011 5:53 pm

That's great news, anamishguy! Thanks for the update and keep celebrating your health ;)
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Postby rusty2 » Tue Apr 19, 2011 7:24 pm

I am so glad to hear this. How wonderful for you!!
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Postby anamishguy » Mon Jun 13, 2011 3:01 pm

Does anyone have any experience filing an appeal with an insurance company? My insurance company said the procedure would be covered before my appointment and I just found out today 3 months post CCSVI procedure they are not covering. I can file an appeal, but I will need overwhelming evidence on my side. Any help would be appreciated.

I have my 3 month follow up 1 week from tomorrow and I am still doing well. I went hiking with the family yesterday. We hiked around 3 miles and I did not have any problems. I don't know if I will have a 6 months check up if the insurance is not going to cover it. I hope I am still doing well enough to feel good about skipping it if that would be the case.
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Postby Donnchadh » Mon Jun 13, 2011 5:01 pm

anamishguy wrote:Does anyone have any experience filing an appeal with an insurance company? My insurance company said the procedure would be covered before my appointment and I just found out today 3 months post CCSVI procedure they are not covering. I can file an appeal, but I will need overwhelming evidence on my side. Any help would be appreciated.

I have my 3 month follow up 1 week from tomorrow and I am still doing well. I went hiking with the family yesterday. We hiked around 3 miles and I did not have any problems. I don't know if I will have a 6 months check up if the insurance is not going to cover it. I hope I am still doing well enough to feel good about skipping it if that would be the case.


Do you have anything in writing from the insurance company stating you were covered (before the procedure was undertaken)?

Perhaps legal council is necessary?

It sounds like your procedure was necessary, warranted, and successful.

Donnchadh
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Got MS?.....Get Liberated!
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