This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Fri May 24, 2013 12:58 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 4 posts ] 
Author Message
PostPosted: Fri Mar 25, 2011 5:58 am 
Offline
Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
My first MRI of brain and C-spine after the venoplasty in Poland.
Fast information: no progression, no changes, no active lesions, nothing is better

I had my MRI done about 10 days before the venoplasty - results: about 30 brain lesions, 3 C-spine lesions, corpus callosum atrophy, external type of brain atrophy. The lesions are infra and supratentioral.
I also have some minor problems with my C-spine.

After - I had my MRI done about 1 year and 4 months after the venoplasty.
No changes.

I think I had about 7 or 8 MRIs so far. This is the first time without progression.
I still take only LDN for my MS - if I may use this expression.

I do not have any new symptoms but I still feel my old and I am weaker.
World simply wants too much from me. People still think if I look normal I feel normal. They are very wrong. Moreover disabled people have it very difficult in this country.

Anyhow, it is good news for me.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse


Top
 Profile  
 
PostPosted: Fri Mar 25, 2011 7:50 am 
Offline
Family Elder
User avatar

Joined: Thu Jul 09, 2009 3:00 pm
Posts: 1274
Hi Erika,

Yes, sixteen months without progression is good news for you. :D Having an MRI just before your procedure was very smart.

It's so unfair when healthy people think pwMS feel normal just because they look normal. There have been many times this has happened to me, too. After 11 years of this, I now just say to those people, "Well, if you had seen me last week, you wouldn't be saying that," which usually works to wake up those people.

You will be in my prayers, Erika, as I continue to thank you for giving me so much inspiration and hope.


Top
 Profile  
 
PostPosted: Fri Mar 25, 2011 7:53 am 
Offline
Family Elder
User avatar

Joined: Fri Mar 12, 2010 4:00 pm
Posts: 2988
Location: Brooklyn, New York
ErikaSlovakia wrote:
My first MRI of brain and C-spine after the venoplasty in Poland.
Fast information: no progression, no changes, no active lesions, nothing is better

I had my MRI done about 10 days before the venoplasty - results: about 30 brain lesions, 3 C-spine lesions, corpus callosum atrophy, external type of brain atrophy. The lesions are infra and supratentioral.
I also have some minor problems with my C-spine.

After - I had my MRI done about 1 year and 4 months after the venoplasty.
No changes.

I think I had about 7 or 8 MRIs so far. This is the first time without progression.
I still take only LDN for my MS - if I may use this expression.

I do not have any new symptoms but I still feel my old and I am weaker.
World simply wants too much from me. People still think if I look normal I feel normal. They are very wrong. Moreover disabled people have it very difficult in this country.

Anyhow, it is good news for me.
Erika


erika
wonderful news. but we are treating you not your mri

can you tell me whether any of the lesions were described as enhancing with gadolinium??


Top
 Profile  
 
PostPosted: Fri Mar 25, 2011 9:14 am 
Offline
Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
drsclafani wrote:
ErikaSlovakia wrote:
My first MRI of brain and C-spine after the venoplasty in Poland.
Fast information: no progression, no changes, no active lesions, nothing is better

I had my MRI done about 10 days before the venoplasty - results: about 30 brain lesions, 3 C-spine lesions, corpus callosum atrophy, external type of brain atrophy. The lesions are infra and supratentioral.
I also have some minor problems with my C-spine.

After - I had my MRI done about 1 year and 4 months after the venoplasty.
No changes.

I think I had about 7 or 8 MRIs so far. This is the first time without progression.
I still take only LDN for my MS - if I may use this expression.

I do not have any new symptoms but I still feel my old and I am weaker.
World simply wants too much from me. People still think if I look normal I feel normal. They are very wrong. Moreover disabled people have it very difficult in this country.

Anyhow, it is good news for me.
Erika


erika
wonderful news. but we are treating you not your mri

can you tell me whether any of the lesions were described as enhancing with gadolinium??

Thank you Dr. Sclafani!
I do not think so because the description says: active lesions (T1e SE + Gd) - number: zero.
Localization of the lesions:
- infratentorial - number: 5-6
- supratentorial - number: 20-25
- T2 lesions: mostly periventricular
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 4 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. 3 months after Poland & second procedure in Lisbon

mtf

4

1209

Mon Sep 13, 2010 10:34 am

mtf View the latest post

There are no new unread posts for this topic. Liberation in 20 months and counting in .. Euromedic Poland

Rialynn

6

1960

Wed May 05, 2010 10:53 am

Rialynn View the latest post

There are no new unread posts for this topic. Venoplasty

albertus

1

1127

Tue Apr 27, 2010 9:33 am

LR1234 View the latest post

There are no new unread posts for this topic. VENOPLASTY FOR PPMS

[ Go to pageGo to page: 1, 2, 3 ]

KEVIN151

36

5220

Wed Aug 04, 2010 7:58 pm

garyak View the latest post

There are no new unread posts for this topic. Steroids and venoplasty - do they mix?

SaintLouis

4

1090

Thu Sep 30, 2010 9:36 am

bluesky63 View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: