The Alberta MS Society says "We are sorry"

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Cece » Thu Mar 31, 2011 8:22 pm

HappyPoet wrote:
frodo wrote:I suppose they just cannot say "we apologize for killing some of you...". Though in fact is what they did.

I hope they will have at least some problems sleeping.

Frodo,
It is unconscionable how the Canadian MS establishment allowed Mahir Mostic to die in Costa Rica because he was denied follow-up care at home in Canada.

I, too, hope they will have at least some problems sleeping.

Agreed, very much. Right after his passing, the MS Societies began squeaking about the need for Canadian MS patients to have follow-up care. We'd been saying so for months. Where were they then.
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Postby HappyPoet » Thu Mar 31, 2011 8:23 pm

Lyon wrote:
HappyPoet wrote: How is the Alberta MS Society not responsible for his death?
You've got me totally baffled so I guess you "win" that one.

Lyon, you should be ashamed of yourself.

Mr. Mostic died, Lyon -- he actually died -- but you talk about a "win" as if his death is some kind of game??? Something is very wrong with your behavior, Lyon, very wrong.

You and I should continue this discussion in a new thread.
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Postby Lyon » Thu Mar 31, 2011 8:43 pm

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Postby HappyPoet » Thu Mar 31, 2011 9:59 pm

http://www.merriam-webster.com/dictionary
tongue–in–cheek
adj
Definition of TONGUE-IN-CHEEK:
characterized by insincerity, irony, or whimsical exaggeration
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Postby Lyon » Fri Apr 01, 2011 2:57 am

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Postby HappyPoet » Fri Apr 01, 2011 4:46 am

Lyon wrote:
HappyPoet wrote:http://www.merriam-webster.com/dictionary
tongue–in–cheek
adj
Definition of TONGUE-IN-CHEEK:
characterized by insincerity, irony, or whimsical exaggeration
And since the "win" was referring to your doing it and "whimsical exageration" you disagree with that? I don't.

Lyon, Mr. Mostic died, you seem to keep forgetting -- "whimsical exaggeration" is shameful and out of place in this discussion.
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Postby Lyon » Fri Apr 01, 2011 5:58 am

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Postby jackiejay » Fri Apr 01, 2011 6:14 am

is Dr. McDonald trying to get private funds for his proposed trials?
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Postby Blaze » Fri Apr 01, 2011 6:24 am

jackiejay wrote:is Dr. McDonald trying to get private funds for his proposed trials?


Dr. McDonald is trying to get funding from any source he can. When I win LottoMax, I'll fund him!
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Postby PCakes » Fri Apr 01, 2011 7:41 am

Blaze wrote:
jackiejay wrote:is Dr. McDonald trying to get private funds for his proposed trials?


Dr. McDonald is trying to get funding from any source he can. When I win LottoMax, I'll fund him!


Hi Blaze,

Another 'great minds' moment.. :)
Is there a known route to donate directly to Dr McDonald's research?
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Postby Blaze » Fri Apr 01, 2011 7:56 am

PCakes wrote:
Hi Blaze,

Another 'great minds' moment.. :)
Is there a known route to donate directly to Dr McDonald's research?


So far, nothing formal just for Dr. McDonald, but I understand the New Hope for MS tour hopes to raise $ for clinical trials, including Dr. McDonald's.
http://www.newhopeforms.ca/

There should be more info available in their conference call next Tuesday @ 4:00 EST. Dr. McDonald, Tim Donovan and others will be participating. Join in!
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Postby HappyPoet » Fri Apr 01, 2011 9:00 am

I'd like to make a donation to Dr. McDonald, too.

I've done what searching I can but wasn't able to find a direct route to him, only links to pwMS raising funds on his behalf, nothing official. Perhaps there is a fund for him associated with St. Joseph's Hospital?
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Postby Blaze » Fri Apr 01, 2011 9:18 am

HappyPoet wrote:I'd like to make a donation to Dr. McDonald, too.

I've done what searching I can but wasn't able to find a direct route to him, only links to pwMS raising funds on his behalf, nothing official. Perhaps there is a fund for him associated with St. Joseph's Hospital?


Dr. McDonald is not associated with St. Joseph's. That's Dr. Haacke.

I will ask Tim Donovan to be sure to have Dr. McDonald cover this issue in next week's conference call. Also, as I understand it Dr. McDonald also does not have medical approval to proceed with a clinical trial yet. He may address this next week as well.

Here's a link to information about how to join the conference call: http://www.newhopeforms.ca/3/miscellaneous2.htm
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Postby belsadie » Fri Apr 01, 2011 10:53 am

I'm confused. I thought the Canadian people mandated that their elected government is responsible for optimum health care for their citizens. Don't you already Pay for that....What an indictment on your gov't considering the need to have private fund raising for Dr. Mc D.
Good Luck in your efforts to obtain the level of treatment/care you are so deserving of!
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Postby Blaze » Fri Apr 01, 2011 11:45 am

belsadie wrote:I'm confused. I thought the Canadian people mandated that their elected government is responsible for optimum health care for their citizens. Don't you already Pay for that....What an indictment on your gov't considering the need to have private fund raising for Dr. Mc D. !


Here's a short answer to a very long story. College of Physicians and Surgeons won't allow docs to treat CCSVI in Canada. MS Society wrote to politicians advising them not to fund treatment because of a lack of research. Next, MS Society and neurologists served on a panel of "experts" which recommended government not fund treatment research.

MS Society is only funding imaging research, with most of the $ going to neurologists who are opposed to CCSVI while snubbing Drs. McDonald and Haacke.

So, Dr. McDonald and others are seeking Research Ethics Board (similar to American IRB) approval, as well as funding for double blind clinical studies.

Confusing?!? You bet! I can think of other words that better describe this, but I can't use them here.
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