blossom wrote:
i think we have all taken off our "rose colored glasses" when it comes to the total picture. but, why does there have to be a good guy bad guy?
as long as someone isn't acting like mr. filthy mcnasty and has a story or opinion that may not be what we want to hear but it is what it is-what's the problem? same goes for the good stories-what's the problem? i love hearing them.
i'd rather hear all good-i wish i experienced good but i'm very happy for those who do. and, my heart aches for those who are experiencing the which way do i go now.
I don't like it to seem a "good guy/bad guy" situation either but since the very beginning of interest in CCSVI I've been trying to point out that there are people who have heard a little about CCSVI and who desperately want nothing more than to come here and reinforce the miraculous things they've heard about CCSVI.
It's nothing more than a cop-out to carry the mindset that if someone doesn't investigate CCSVI well enough and goes into debt and takes the risks and has a bad outcome without having done their homework they only have themselves to blame. From the beginning has been the place for laymen to go to find out about CCSVI and we should always be mindful that there are ALWAYS multiple people out there who may never register but are reading what we say. At this moment there are 6 registered, 2 with their ID's hidden and
30 guests.
With it in mind that there are FAR more guests than people who are able to ask questions or respond it's important to keep in mind (I think) that:
Because MS is a chronic, progressive disease a good percentage of those people are on one income or disability with dial up internet or limited time to search for info at a library computer
Obviously because optic neuritis is such a common MS symptom, poor eyesight can make it time consuming and a huge chore to exhaustively search thisisms to get as well rounded picture of CCSVI that someone would need to make a reasonably educated opinion.
Not flattering but needing to be addressed anyway is that cogfog and fatigue hammer a high percentage of PWMS so comprehending some of the complicated things about CCSVI they are reading at thisisms is harder and more time consuming and fatigue compounds the problem and makes it that much more likely that they'll trust someone else's opinion rather than making their own educated opinion. Which way are they going to lean? Likely towards what they most want to believe.
It's not up to me but I am and have always been fine with someone's educated decision as to whether they want to be liberated or not but I think we owe it to the loved ones of others to make a balanced view as accessible as possible and not repeatedly scour the internet for glory stories and even at that mine them for quotes which only highlight the especially swooning quotes.
Login
Register
FAQ
Search
