greenmtns wrote:I'm new here and to MS. But just some observations I have seen with symptoms some people and that I have that would make me think there might be a blood flow issue. Cold hands and feet, inverted sleeping helps(allowing blood to drain from the head easier), excersise has helped many people (gets blood flowing). I am interested in CCSVI and have been looking to get it done somewhere but don't know where. I have read many good posts about it and I have a read many negative posts too. I might hold off a while to see if they can get some new procedures to reduce unwanted side effects.
Lyon wrote:The comments are also interesting....Hi Sharon, My name is Tim and i had the ccsvi treatment sept 2009 and it is now almost aPR 2010 and 1 of my Jugular veins and vertabrae veins have closed up again on the left side.My right side is still o.k. Because the blood has to travel across to the other side to get out is doing more damage than before. i was cutting the grass is Sept and now can hardly walk. I have now been diagnosed with primary progressive. I take no drugs at all and have had M.S for 20 yearsI was liberated @ a clinic in Albany. The immediate results were outstanding! Two weeks later, my symptoms began progressing again, right hand and foot got very cold and i no longer had much balance - back to walker for me! I'm living in Quebec on disability, have no savings and was told the treatment would not be repeated at that clinic. Zero follow up, and now I am at a complete loss. What can I do?!
Lyon wrote: Hard to believe your moniker is "fogdweller" since you've made the first coherant response that I've seen in this thread.
Lyon wrote:Yes, if I wanted to replace every vestige of science with nothing more than layman opinion, I would have to admit that.Cece wrote:You have to admit, there are a lot of wonderful outcomes out there. I wouldn't be able to post these sorts of quotes if they weren't published in the first place.
Lyon wrote:All the time you've been here I assumed it regarded "cogfog" and that the pic was just kind of a play on words.fogdweller wrote:Actually I am fogdweller because I live on the coast in Northern California. The photo in my avitar was taken out my back window.
Awesome friggin' view. Please attach a bigger version some time that I can make out better.
I was only in California once about 35 years ago. My sister in law lived in Petaluma let me use her Datsun B-210 to go to San Francisco. I filled it with gas and parked it and when I came back to the car the darned hill was so steep that I had a river of gasoline going down the road. Pretty area, but I like my nice flat Michigan!
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