The comments are also interesting....
Hi Sharon, My name is Tim and i had the ccsvi treatment sept 2009 and it is now almost aPR 2010 and 1 of my Jugular veins and vertabrae veins have closed up again on the left side.My right side is still o.k. Because the blood has to travel across to the other side to get out is doing more damage than before. i was cutting the grass is Sept and now can hardly walk. I have now been diagnosed with primary progressive. I take no drugs at all and have had M.S for 20 years
I was liberated @ a clinic in Albany. The immediate results were outstanding! Two weeks later, my symptoms began progressing again, right hand and foot got very cold and i no longer had much balance - back to walker for me! I'm living in Quebec on disability, have no savings and was told the treatment would not be repeated at that clinic. Zero follow up, and now I am at a complete loss. What can I do?!
I agree, lyon, that we need to keep a balanced view, and alothough I strongly doubt it at thi point, there may even turn out to be no benefit at all to anyone from treating CCSVI. We all are awaiting good studies and they should be out soooooon??!!
It is interesting to note that both of these may well have been helped by treatment but lost the positive benefit because of restenosis. The first patient, Tim, knows for a fact he restenosided. The second patient strongly suspects that since he had very good results immediately post procedure, lost those benefits, and has had and then no follow up at all.
I am exactly in this catagory. I had some remarkable results immediately post procedure and then they faded and I have been progressing, possibly a bit faster than pre-procedure. I had strong reson to suspect some thrombosis but no follow up at all since. I am now 6 months post, and am working on getting full follow-up. I will let everyone know what I find out when I find out. I am crossing my fingers that I did not restenose and then that turned to scar tissue and really plugged up my jugulars.