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PostPosted: Tue Mar 29, 2011 9:08 am 
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Does anybody know how long before we may be able to get CCSVI treatment on the NHS? Are any trials being done in the UK to persuade NICE?


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PostPosted: Tue Mar 29, 2011 10:00 am 
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Doubt it.

I do not know of any trials being done here at all. The Neurology community here are also a tough bunch who think the whole CCSVI thing is a bit of a joke. NICE are a conservative group and right now there is simply not enough information for them to offer this treatment on an already strained NHS.


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PostPosted: Tue Mar 29, 2011 1:27 pm 
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Our best chance right now is the Edinburgh Health Clinic, they are proceeding and monitoring in as scientific a way as this procedure allows.

They will make all their findings available as soon as they can.

Honestly I think we're in for a long haul but I have a feeling this will not go away.

It's hard to get a trial going whne the reason for not starting a trial is there's never been a trial. That's a belter of a circular argument.


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