This Is MS Multiple Sclerosis Community: Knowledge & Support

[Hampshireman]

Does anybody know how long before we may be able to get CCSVI treatment on the NHS? Are any trials being done in the UK to persuade NICE?

[Daisy3]

Doubt it.

I do not know of any trials being done here at all. The Neurology community here are also a tough bunch who think the whole CCSVI thing is a bit of a joke. NICE are a conservative group and right now there is simply not enough information for them to offer this treatment on an already strained NHS.

[EJC]

Our best chance right now is the Edinburgh Health Clinic, they are proceeding and monitoring in as scientific a way as this procedure allows.

They will make all their findings available as soon as they can.

Honestly I think we're in for a long haul but I have a feeling this will not go away.

It's hard to get a trial going whne the reason for not starting a trial is there's never been a trial. That's a belter of a circular argument.