Filmmaker wrote:Well, how about people who restenose, and people who get worse from the liberation procedures? Is that the hope you want to give them?... MS being congenital, maybe even genetical? Is that the hope you are looking for?... Once you are progressive there is nothing liberation can do for you, is that what you call hope?...
I agree with the fact that we concentrate on correcting the stenoses while we don't even know their cause, how can you correct a problem if we have no idea what it comes from?
Let's ask a simple question: what are the plaques?!!! What are these organic things deposited on the brain and called lesions?!!! have we identified what it is?
Well if we haven't I can tell you the answer: collagen!!! It's the collagen of our brain... just like collagen is "eaten" in RA (rheumatoid arthritis) for example, in our case it's not the collagen of our bones but our brain.... What happens when a tissue looses its collagen? It becomes more and more liquid (our body is about 70% water and 30% collagen -proteins... Have we identified stenoses in RA patients too? Do we know how collagen deposits are created by/from vein stenoses?! it's just obvious that this theory of CCSVI is only a minimal part of the whole problem, and helping the venous drainage is still not recreating our brain collagen... So please, help the research but identifying the real issue.
The Lyme spirochete loves connective tissue (ie: collagen), and often affects one side of the body "preferentially". I know, I know... one of the first tests we get is for Lyme, along with syphilis, brain tumours, etc. But the Lyme spirochete has a cycle, and if one is not tested at the right time in that cycle, the bacterium is missed. The Lyme spirochete is able to "cloak" itself in macrophages and other cells, and only pokes its head out in its cycle.
I am on an anti-biotic protocol that includes minocycline. I cannot say if it is the change in season (affects me), but I am feeling better 6 months in. Interestingly, in 2007, Dr. Luanna Metz of Calgary did a study with minocycline and found an 84% reduction in lesions in subjects who took only mino, and 63% (or less) in those also taking DMDs. The study ended, and they were going to continue it out to 30 months, but it seems to have faded away. Maybe the DMD sponsors did not like the results. I read recently that Dr. Metz has been funded some 4.5 million$ (MSSC) to do a study with mino and CIS. I don't know what happened to the "MS" study.
Sorry to not provide links, but it's late, and I am fogged. A lot of ideas com from http://www.bacteriality.com
. That is a good starting point for the curious. Other than that, you have to get inside my head. Don't worry - there is lots of room with my shrunken parynchema.
My name is not really Johnson. MSed up since 1993