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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Cece
PostPosted: Wed Mar 30, 2011 10:02 am 
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Hawaii
South Dakota
North Dakota
Iowa
Wisconsin
Alaska
South Carolina
West Virginia
Ohio
Utah
New Mexico
Tennessee
Texas
Louisiana
Arkansas
Oklahoma
Colorado
Nevada
Kansas
Michigan*
Missouri*

Please post if you know your state does not have a CCSVI-treating IR (or conversely if it is on this list in error.) I'll update this post accordingly. I'd like to get a sense of where the gaps still are, nationwide.

* I can also update if a state has no openly treating CCSVI docs but there is someone to pm who might know of one. In this category, there is now Michigan (formyruca) and Missouri (Ozarkcanoer). :)


Last edited by Cece on Sat Apr 02, 2011 5:12 pm, edited 4 times in total.

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IHateMS
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PostPosted: Wed Mar 30, 2011 11:28 am 
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west virginia? ohio?
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CaptBoo
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PostPosted: Wed Mar 30, 2011 12:20 pm 
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New Mexico, Texas, Louisiana, Arkansas, Oklahoma, Colorado, Utah, Nevada, Kansas. I don't know, bit I have heard nothing about these states. Texas used to have a pin on Hubbard's IRB map, but it disappeared.

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CaptBoo
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PostPosted: Wed Mar 30, 2011 12:21 pm 
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Look! I'm a family elder.

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David1949
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PostPosted: Wed Mar 30, 2011 1:55 pm 
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Michigan.
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civickiller
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PostPosted: Wed Mar 30, 2011 3:44 pm 
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Sucks being in Hawaii. I was talking to a local IR and he seemed interested. Is there a website or something that says what the IR procedure has to be, something I can print out an show him?
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bestadmom
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PostPosted: Wed Mar 30, 2011 6:29 pm 
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Civickiller,

Hopefully the IR you found went to SIR this week. If not he should reach out to some of the leading doctors. They all share. There is a professional forum on ccsvi for members of endovascular.org.
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bonzo1986
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PostPosted: Wed Mar 30, 2011 7:08 pm 
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New Mexico does not have anyone doing this. Although there is a vascular surgeon that was recommened to me when I was looking around for capable of doing an MRV.
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Cece
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PostPosted: Sat Apr 02, 2011 1:13 pm 
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civickiller, what about Dr. Sclafani's paper in endovascular today from last summer?

http://bmctoday.net/evtoday/pdfs/et0710 ... lafani.pdf

It might be getting outdated, what has changed since then?

We had another TIMS member, selkie, from HI who couldn't find treatment afaik. I would love to see a Hawaiian IR get started. Travelling for treatment is possible but you need someone local for follow-ups or complications and you guys are just so far out there.
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thornyrose76
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Missourri?
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thornyrose76
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What about Tennessee?
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bestadmom
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PostPosted: Sat Apr 02, 2011 2:26 pm 
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There is an IR at WashU in St Louis doing treatments. Ozarkcanooer knows his name.
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Cece
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PostPosted: Tue Apr 12, 2011 8:52 pm 
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I just saw Utah mentioned as having two CCSVI IRs...Black and Hatch in provo, ut...it might be testing only?
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Cece
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PostPosted: Tue Apr 19, 2011 2:04 pm 
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Texas is officially off the list, they've got CCSVI treatment available at Baylor:
http://www.debakeydepartmentofsurgery.o ... ent_id=272
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CaptBoo
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PostPosted: Tue Apr 19, 2011 2:18 pm 
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That's Baylor School of Medicine in Houston, not Baylor University in Waco.

That's a huge step in the world of medicine!

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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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