This Is MS Multiple Sclerosis Community: Knowledge & Support

Hawaii
South Dakota
North Dakota
Iowa
Wisconsin
Alaska
South Carolina
West Virginia
Ohio
Utah
New Mexico
Tennessee
Texas
Louisiana
Arkansas
Oklahoma
Colorado
Nevada
Kansas
Michigan*
Missouri*

Please post if you know your state does not have a CCSVI-treating IR (or conversely if it is on this list in error.) I'll update this post accordingly. I'd like to get a sense of where the gaps still are, nationwide.

* I can also update if a state has no openly treating CCSVI docs but there is someone to pm who might know of one. In this category, there is now Michigan (formyruca) and Missouri (Ozarkcanoer).

west virginia? ohio?

New Mexico, Texas, Louisiana, Arkansas, Oklahoma, Colorado, Utah, Nevada, Kansas. I don't know, bit I have heard nothing about these states. Texas used to have a pin on Hubbard's IRB map, but it disappeared.

_________________
<div>There be no dragons   ...Reese Palley</div>

Look! I'm a family elder.

_________________
<div>There be no dragons   ...Reese Palley</div>

Michigan.

Sucks being in Hawaii. I was talking to a local IR and he seemed interested. Is there a website or something that says what the IR procedure has to be, something I can print out an show him?

Civickiller,

Hopefully the IR you found went to SIR this week. If not he should reach out to some of the leading doctors. They all share. There is a professional forum on ccsvi for members of endovascular.org.

New Mexico does not have anyone doing this. Although there is a vascular surgeon that was recommened to me when I was looking around for capable of doing an MRV.

civickiller, what about Dr. Sclafani's paper in endovascular today from last summer?

http://bmctoday.net/evtoday/pdfs/et0710 ... lafani.pdf

It might be getting outdated, what has changed since then?

We had another TIMS member, selkie, from HI who couldn't find treatment afaik. I would love to see a Hawaiian IR get started. Travelling for treatment is possible but you need someone local for follow-ups or complications and you guys are just so far out there.

Missourri?

What about Tennessee?

There is an IR at WashU in St Louis doing treatments. Ozarkcanooer knows his name.

I just saw Utah mentioned as having two CCSVI IRs...Black and Hatch in provo, ut...it might be testing only?

Texas is officially off the list, they've got CCSVI treatment available at Baylor:
http://www.debakeydepartmentofsurgery.o ... ent_id=272

That's Baylor School of Medicine in Houston, not Baylor University in Waco.

That's a huge step in the world of medicine!

_________________
<div>There be no dragons   ...Reese Palley</div>