states without CCSVI-treating IRs

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

states without CCSVI-treating IRs

Postby Cece » Wed Mar 30, 2011 9:02 am

Hawaii
South Dakota
North Dakota
Iowa
Wisconsin
Alaska
South Carolina
West Virginia
Ohio
Utah
New Mexico
Tennessee
Texas
Louisiana
Arkansas
Oklahoma
Colorado
Nevada
Kansas
Michigan*
Missouri*

Please post if you know your state does not have a CCSVI-treating IR (or conversely if it is on this list in error.) I'll update this post accordingly. I'd like to get a sense of where the gaps still are, nationwide.

* I can also update if a state has no openly treating CCSVI docs but there is someone to pm who might know of one. In this category, there is now Michigan (formyruca) and Missouri (Ozarkcanoer). :)
Last edited by Cece on Sat Apr 02, 2011 4:12 pm, edited 4 times in total.
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Advertisement

Postby IHateMS » Wed Mar 30, 2011 10:28 am

west virginia? ohio?
User avatar
IHateMS
Family Elder
 
Posts: 168
Joined: Sun May 17, 2009 2:00 pm

Postby CaptBoo » Wed Mar 30, 2011 11:20 am

New Mexico, Texas, Louisiana, Arkansas, Oklahoma, Colorado, Utah, Nevada, Kansas. I don't know, bit I have heard nothing about these states. Texas used to have a pin on Hubbard's IRB map, but it disappeared.
<div>There be no dragons   ...Reese Palley</div>
User avatar
CaptBoo
Family Elder
 
Posts: 122
Joined: Wed Aug 18, 2010 2:00 pm
Location: SC, NM

Postby CaptBoo » Wed Mar 30, 2011 11:21 am

Look! I'm a family elder.
<div>There be no dragons   ...Reese Palley</div>
User avatar
CaptBoo
Family Elder
 
Posts: 122
Joined: Wed Aug 18, 2010 2:00 pm
Location: SC, NM

Postby David1949 » Wed Mar 30, 2011 12:55 pm

Michigan.
David1949
Family Elder
 
Posts: 649
Joined: Mon Aug 23, 2010 2:00 pm

Postby civickiller » Wed Mar 30, 2011 2:44 pm

Sucks being in Hawaii. I was talking to a local IR and he seemed interested. Is there a website or something that says what the IR procedure has to be, something I can print out an show him?
User avatar
civickiller
Family Elder
 
Posts: 557
Joined: Thu Feb 04, 2010 3:00 pm
Location: Hawaii

Postby bestadmom » Wed Mar 30, 2011 5:29 pm

Civickiller,

Hopefully the IR you found went to SIR this week. If not he should reach out to some of the leading doctors. They all share. There is a professional forum on ccsvi for members of endovascular.org.
User avatar
bestadmom
Family Elder
 
Posts: 722
Joined: Mon May 18, 2009 2:00 pm
Location: CT

Postby bonzo1986 » Wed Mar 30, 2011 6:08 pm

New Mexico does not have anyone doing this. Although there is a vascular surgeon that was recommened to me when I was looking around for capable of doing an MRV.
User avatar
bonzo1986
Getting to Know You...
 
Posts: 16
Joined: Mon Feb 01, 2010 3:00 pm

Postby Cece » Sat Apr 02, 2011 12:13 pm

civickiller, what about Dr. Sclafani's paper in endovascular today from last summer?

http://bmctoday.net/evtoday/pdfs/et0710 ... lafani.pdf

It might be getting outdated, what has changed since then?

We had another TIMS member, selkie, from HI who couldn't find treatment afaik. I would love to see a Hawaiian IR get started. Travelling for treatment is possible but you need someone local for follow-ups or complications and you guys are just so far out there.
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Postby thornyrose76 » Sat Apr 02, 2011 1:07 pm

Missourri?
User avatar
thornyrose76
Family Elder
 
Posts: 462
Joined: Mon Nov 23, 2009 3:00 pm

Postby thornyrose76 » Sat Apr 02, 2011 1:07 pm

What about Tennessee?
User avatar
thornyrose76
Family Elder
 
Posts: 462
Joined: Mon Nov 23, 2009 3:00 pm

Postby bestadmom » Sat Apr 02, 2011 1:26 pm

There is an IR at WashU in St Louis doing treatments. Ozarkcanooer knows his name.
User avatar
bestadmom
Family Elder
 
Posts: 722
Joined: Mon May 18, 2009 2:00 pm
Location: CT

Postby Cece » Tue Apr 12, 2011 7:52 pm

I just saw Utah mentioned as having two CCSVI IRs...Black and Hatch in provo, ut...it might be testing only?
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Postby Cece » Tue Apr 19, 2011 1:04 pm

Texas is officially off the list, they've got CCSVI treatment available at Baylor:
http://www.debakeydepartmentofsurgery.o ... ent_id=272
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Postby CaptBoo » Tue Apr 19, 2011 1:18 pm

That's Baylor School of Medicine in Houston, not Baylor University in Waco.

That's a huge step in the world of medicine!
<div>There be no dragons   ...Reese Palley</div>
User avatar
CaptBoo
Family Elder
 
Posts: 122
Joined: Wed Aug 18, 2010 2:00 pm
Location: SC, NM

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: mystery1980


Contact us | Terms of Service