This Is MS Multiple Sclerosis Community: Knowledge & Support

How exciting. This should really pick up the traffic on MS or make people run the other way.



Here is the entire article:

http://www.smh.com.au/world/science/the ... 1cgfi.html

I doubt these doctors care about what random, anonymous people say about them on the internet anymore than the drug companies care.

Whether or not these doctors are in the pockets of drug companies is really just an issue of semantics. Some call them "consulting fees," others call them "bribes." Tomatoes, tomah-toes.

..

He(Zamboni) believes the negative results of other groups are also a result of bias and that people unwilling to find an association will manage to avoid finding one. But sceptics say this argument runs both ways: his(Zamboni) group is clearly invested in finding an association and might therefore be biased in favour of finding one.[quote]

Interesting point

Oh, they do care. I know of comments stemming from my own experience with a local neurologist that had to be removed because the page owner was contacted by him.

Hey Shannon I am not sure what you mean by that statement. Sorry long day....

Scorp - I think she means that a local neurologist contacted a website specifically to remove messages/posts that criticized him/her.

That's correct. The information was factual, taken from his own words at an event in which he was hosting (funded by a major drug company, of course). He had likened CCSVI to bee venom therapy, and basically showed no interest or respect for those inquiring about it during the presentation. The take home message of the night was basically how "dangerous" the procedure was. I guess maybe it wasn't the right time or place to discuss it that night, but like I said, they definately do care when their names are mentioned at random sites like facebook or on blogs. Even when their own words are being relayed, they do care!

There have been people who have been threatened for saying what they feel about CCSVI so who can blame neuros? The lines have pretty much been drawn. If you are a neuro and you accept CCSVI you are accepted as a hero but if you question it or ask critical questions about the validity of CCSVI you are an uncaring pharma lovin' son of a gun. I do think that people who feel very strongly about the future of CCSVI should have a conversation with their neurologist about their expectation for treatment, especially if they plan on choosing angioplasty in the future.

There was a condescending quote from a neuro: "The things they used to do, like rub lotions on themselves or (bee stings), didn't hurt them."

We are just a bunch of well-moisturized bee-stung fools, now with restored blood flow!

Some questions for the neuros:
1) Can you cure MS? No?
2) Can you seriously slow down the progression of the disease? No?
3) Do the disease modifying drugs you prescribe have negative side effects? Minor things like PML and death?
4) Do the DMD's work for people who have non-relapsing remitting MS? No?
5) How does the cost of the DMDs compare to the liberation procedure? More expensive?

If the neuros had something worthwhile to offer, people would probably not be interested in Liberation.

In 15 years with MS I've never taken their drugs and I've never regretted that decision. I haven't seen a neuro in 7 years and I don't regret that either.

Neuros when you can cure me give me a call, but I won't hold my breath waiting.

david1949, yep, i feel the same way.

Here we go again, "stuff said on internet via anonymous postings are ascribed worldwide import", requiring an immediate response to the "crisis".

Somehow, I think the neurologists, and the pharma companies will be just fine, so they lose a couple collective billion , nothing to sneeze at, but they will survive, there's plenty of nails around for their hammers to hit...

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

That I agree with.

groundbreaking stuff here...

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com