CCSVI TORONTO CENSUS by Jamie of CCSVI in MS Toronto

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI TORONTO CENSUS by Jamie of CCSVI in MS Toronto

Postby Chrystal » Fri Apr 01, 2011 9:15 pm


https://www.facebook.com/notes/ccsvi-in ... 6970099919

CCSVI Toronto Census:

by CCSVI in MS Toronto on Friday, April 1, 2011 at 4:54pm


Social Networking sites with the help of Media and MS'ers have kept the momentum of CCSVI from being buried, as the "Neuro world" attempts to bury a theory that has been around for close to 100 years. Now with 2010 technology with the help of Dr. Zamboni and others, we have a level playing field for people with MS to make their own decisions and choices on their therapy, where we have seen thousands of testimonials of improvement and quality of their lives. Now it's time to gather information and data to assist Professionals, Media and people to make their own choice.

We would like to accumulate information and pass to our trusted friends in the media and various politicians in support for them to use in future stories or debates they may have that can help all Canadians and those around the world achieve this simple angioplasty, to relieve their symptoms of MS. How many times have we heard "official based evidence" no better place than CCSVI in MS Toronto and its members that ARE the evidence that have paid out of pocket in attempt to regain their lives back. This information will not only help the newly diagnosed but prove the point it costs 0$ and NOT a year+ to accumulate valid information and share with people seeking out information, if this is the right choice of therapy for them.

The way CMSS has entrusted those with MS to raise $$$ for them to do on their agenda, these numbers will be entrusted the way CCSVI in MS Toronto has helped so many gain a life back and this will be OUR agenda and this information will be used in a confidential manner as we have your trust and respect. In leading up to rallies across the country and the world, the information can be achieved and shared by May 5, 2011 and presented to groups across the country to present to their Provincial Health Ministers not to mention anyone can send a request for this information.

This could be a valuable tool for many Dr's and Professionals involved with CCSVI going forward.

As we know many "Calendars" and posts / threads have already been set up but where is that information going? Is it being used in an effective manner or just personal use and personal gain? I personally have taken part and often wonder where has my information gone and what has it helped? As we see the CMSS and the Government (or is this just another election promise) are interested in the number of CCSVI cases. Well let's show them we can produce our own official study and make sure when they do release their numbers, they will be held accountable or somewhat comparable and we will have the backing of various media outlets awaiting on our results as well, as I have been in touch with some. This could be our own "Online Poll" / "Census of CCSVI"

As we have seen with the snapshot of 2 million views back in February can you just picture how many views each day, when the results get published? We have seen countries change in Leadership the last while with the influence of Social Media, think this is how Social Media changed the health of so many around the world and on future health studies that do NOT need to take a year to count numbers and thousands of dollars wasted. Instead this will cost $0 and only my time which I am glad to contribute and share with you all.

I am very passionate about this "Online Registry" to the point where I will be spending only my time to ensure this is done with professionalism and efficacy that you all have come to know and respect of CCSVI Toronto. I am looking for this to run April 1 to April 30 through a team effort from each of you that have made CCSVI Toronto a valuable tool for MS'ers.
With our Canadian Government taking away the 2011 Census, it is time for MS'ers to stand up and be counted. Thanking you in advance for your participation.

Questionnaire / Census of Liberation Procedure:

1. Name / Email Address

2. Age / Sex / Province / Country of Residence

3. EDSS Disability score - http://en.wikipedia.org/wiki/Expanded_D ... atus_Scale

4. Date Diagnosis of MS

5. Are you currently being monitored by a Neurologist

6. What form of Media and when first heard of CCSVI in MS

7. Angioplasty procedure performed Yes or No If no proceed to question #14

8. Date of Procedure

9. Location / City / Country of Procedure

10. Symptoms prior to procedure, Please list 3

11. Symptom Improvements if applicable post procedure, Please list 3

12. Medications stopped if yes please list which ones

13. If follow-up occurred what was result

14. What has information of CCSVI done for you

15. Additional comments / Plans for treatment of MS

A compilation of information will be kept in strict confidence and anonymity by issuing each reply a number of registration and the information can be shared for Media purposes and used to help all those affected by MS.

Please reply to ccsvitorontosurvey@gmail.com and a reply will be handled in a timely manner with further information.

This survey is not only for people on Facebook to share but all are invited to participate as this will help the newly diagnosed make their own choice of therapy. All information collected will be on a voluntary basis.

Thank you,
Jamie

Please reply to: ccsvitorontosurvey@gmail.com
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Chrystal
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Postby Chrystal » Wed Apr 06, 2011 8:26 pm

Bump...

Please circulate this Census to as many Canadian MSers as possible, whether they have been treated for CCSVI yet or not. Thank you.
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Chrystal
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Postby Chrystal » Sat Apr 09, 2011 6:50 pm

bump
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Chrystal
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Postby Chrystal » Thu Apr 14, 2011 2:17 pm

bump...

please circulate ... thank you!
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Chrystal
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