RESULTS and techniques of different doctors (CCSVI)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Liberation » Thu Apr 07, 2011 10:44 am

Cece wrote:
lucky125 wrote:Cece, I guess until you and I go to medical school and become IRs ourselves, we'll never know more than they do!

We shall have to set our sights lower and aim for knowing more than our neurologists. :D :wink:

Image


I agree. :) As far as I remember dr Sclafani mentioned also that he found problems in the lumbar plexus not only with ppms patients. Dr Salvi, the neurologist of dr Zamboni, focused also on these veins at ppms patients. I would love to hear his findings. As a neurologist he might look at things from a different angle.
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Postby 1eye » Thu Apr 07, 2011 11:07 am

To Whom It May Concern:

I think, while SIRS and other organizations are great, size is not everything, where good practices are concerned. The phrases, "intervention by committee" and "handcuffed by liability" come to mind. Like some running shoe or other says, Just Do It. After doing all the talking you need to do with other doctors, and having a lot of direct experience, at the catheter, please help those patients lucky enough to be helped, by publishing a 'best practices' document. To hell with stats, give us your accumulated wisdom and your expert opinion!
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CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
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Postby Nunzio » Thu Apr 07, 2011 1:22 pm

lucky125 wrote:
Cece wrote:That's the third report of Dr. McGuckin ballooning renal veins. Either the rest of the IRs are undertreating this vein or he is overtreating (and I don't know which it is right.) How big of a vein is it? Is there precedence in the literature for ballooning the renal vein as there is for the iliac and May Thurner?

I agree with what you've said in regards to wild wild west, no standardization, caveat emptor.


Dr. McGuckin justifies treating the left renal vein because it drains the hemiazygos. There is no studies about treating it that I am aware of.

Just because one doctor is doing it doesn't mean that he is more right than a doctor who does not.
Nicole

Unless one of the doctor is Dr. Zamboni; In the preliminary study he reported problem in the Renal vein in about 5% of the patients.
This means that any IR that doasn't check the renal vein might miss 5% of patients with a problem that could be helped.

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This picture was taken from a PDF presentation from Dr. Galeotti who is the Doctor performing the procedures in Dr. Zamboni group.
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Postby Cece » Thu Apr 07, 2011 2:14 pm

Nunzio wrote:Unless one of the doctor is Dr. Zamboni; In the preliminary study he reported problem in the Renal vein in about 5% of the patients.
This means that any IR that doasn't check the renal vein might miss 5% of patients with a problem that could be helped.

That is a pretty good trump card. I am convinced.
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Postby frodo » Thu Apr 07, 2011 2:22 pm

Liberation wrote:
Thanks, frodo. I think it is good to hear both the pros and the cons about certain techniques and CCSVI operation in itself. Where did Rici's operation take place?


I do not have more information than what he posted in his thread, but I copy it here:

Dr. Maciej Jaworski
Medicover
Warsaw, Poland
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Postby Liberation » Sat Apr 09, 2011 10:01 am

Dr Sclafani had good news on his new approach:

so far no thrombi with new protocol of sizing balloons....a sigh of hopeful relief


It would be good to know what was the occurance of intimal hyperplasia, scarring. However, I guess that will take more time to asses. I am just also wondering how he could overcome the problem of following up patients coming from abroad.
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