Follow Up UltraSound & Dr. Makris tomorrow

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Follow Up UltraSound & Dr. Makris tomorrow

Postby Donnchadh » Sun Apr 03, 2011 2:07 pm

I have my first scheduled post-op follow-up ultrasound and consult with Dr. Makris tomorrow (4 April 2011).

If anyone has any questions they would like me to ask for them, please post them on this thread.

I am hoping that I haven't re-lapsed...I don't feel like I did but one never really knows for certain without testing.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 3:00 pm

Advertisement

Postby Donnchadh » Sun Apr 03, 2011 2:26 pm

Hastened to add, at the "suggestion" of Kitty (my AK47 totin' cat avatar),
the following:

Kitty

Move your cursor over the above for link.

Enjoy!

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 3:00 pm

Postby Cece » Sun Apr 03, 2011 3:35 pm

Good luck tomorrow! I will have my fingers crossed for veins wide open and flowing.
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Postby rusty2 » Sun Apr 03, 2011 5:15 pm

I wish the best for you tomorrow! Let us know how it goes for you :D
User avatar
rusty2
Family Member
 
Posts: 29
Joined: Wed Sep 10, 2008 2:00 pm
Location: NW Illinois

Re: Follow Up UltraSound & Dr. Makris tomorrow

Postby anamishguy » Mon Apr 04, 2011 3:19 pm

Are you still open? I have another 2 weeks and I will be going back to Dr. Makris for a checkup. I did not have the big results like after the 1st procedure, so I am curious if everything is open all the way.

Donnchadh wrote:I have my first scheduled post-op follow-up ultrasound and consult with Dr. Makris tomorrow (4 April 2011).

If anyone has any questions they would like me to ask for them, please post them on this thread.

I am hoping that I haven't re-lapsed...I don't feel like I did but one never really knows for certain without testing.

Donnchadh
User avatar
anamishguy
Family Member
 
Posts: 43
Joined: Fri Feb 19, 2010 3:00 pm

Postby newlywed4ever » Mon Apr 04, 2011 6:39 pm

Donnchadh & anamishguy - I hope you both have wide open freeways with no detours/construction! Keep us posted - my 3 mos. f/u is with Dr Makris 5/3. I was undecided choosing between Cummings or Makris. The deciding factor was the benefit of staying with AAC and the ease of sharing info with Dr Sclafani (who did my last procedure).
newlywed4ever
Family Elder
 
Posts: 255
Joined: Thu Apr 17, 2008 2:00 pm
Location: Michigan

Postby Donnchadh » Tue Apr 05, 2011 7:35 am

Time only for a quick replay.

Some bad news, but more good news overall.

More later.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 3:00 pm

Postby Cece » Tue Apr 05, 2011 8:49 am

I hope the bad news is not too bad? More good news overall...very cryptic, Donnchadh! Wishing you the best, will wait to hear more.
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Postby Donnchadh » Wed Apr 06, 2011 11:26 am

The sonogram technician is named Colleen, and she was very competent.
Overall, the testing took about a hour. She started by having me lie flat (supine position), and carefully breathing though my mouth. She placed the ultrasound probe at the base of the venous confluence (near the collar bone) on the right hand side and carefully worked her way upwards.
Later, she switched out the ultrasound probe to a trans-cranial version and then placed it just below my cheekbones in order to examine the vertebral veins.

After the right side was completed, she moved the ultrasound machine to my left side and repeated all the steps.

Then I was tested again sitting upright for all the sames sites (right and left sides, down and up the veins).

I asked her how many CCSVI patients she has done now and she said about 25. Colleen went to Brooklyn to learn Dr. Sclafani's (based on Dr. Zamboni's) protocol for a week. She is using the exact same techniques.

So, for us in the mid-west, it is entirely feasible to have a "real" CCSVI ultrasound test. I was impressed how through and efficient she was.
She answered my numerous questions.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 3:00 pm

Postby npost999 » Fri Apr 15, 2011 8:53 am

Curious what the bad news & good news were you mentioned in a previous post?
User avatar
npost999
Family Member
 
Posts: 39
Joined: Tue Jul 20, 2010 2:00 pm

Postby CD » Fri Apr 15, 2011 10:32 pm

Donnchadh wrote:Time only for a quick replay.

Some bad news, but more good news overall.

More later.

Donnchadh


What is the news about the US? You never did say. We are all curious now.
CD
User avatar
CD
Family Elder
 
Posts: 217
Joined: Sun Dec 19, 2010 3:00 pm
Location: USA

Postby Donnchadh » Sat Apr 16, 2011 3:52 am

I am waiting on getting a copy of the ultrasound images and report. Will update later.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 3:00 pm

Postby Cece » Mon Apr 18, 2011 12:45 pm

Hope all is well, Donnchadh, take care.
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Postby newlywed4ever » Mon Apr 18, 2011 5:01 pm

Cece wrote:Hope all is well, Donnchadh, take care.


ditto. We care :)
newlywed4ever
Family Elder
 
Posts: 255
Joined: Thu Apr 17, 2008 2:00 pm
Location: Michigan

Postby npost999 » Mon May 09, 2011 7:37 am

curious if you've received the ultrasound report & if your now able to report on the good/bad news

I head up on the 24th for my US & will return on the 27th of May for the angio is all goes well

NP
User avatar
npost999
Family Member
 
Posts: 39
Joined: Tue Jul 20, 2010 2:00 pm

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service