This Is MS Multiple Sclerosis Community: Knowledge & Support

I have my first scheduled post-op follow-up ultrasound and consult with Dr. Makris tomorrow (4 April 2011).

If anyone has any questions they would like me to ask for them, please post them on this thread.

I am hoping that I haven't re-lapsed...I don't feel like I did but one never really knows for certain without testing.

Donnchadh

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Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

Hastened to add, at the "suggestion" of Kitty (my AK47 totin' cat avatar),
the following:

Kitty

Move your cursor over the above for link.

Enjoy!

Donnchadh

_________________
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

Good luck tomorrow! I will have my fingers crossed for veins wide open and flowing.

I wish the best for you tomorrow! Let us know how it goes for you

Are you still open? I have another 2 weeks and I will be going back to Dr. Makris for a checkup. I did not have the big results like after the 1st procedure, so I am curious if everything is open all the way.

Donnchadh & anamishguy - I hope you both have wide open freeways with no detours/construction! Keep us posted - my 3 mos. f/u is with Dr Makris 5/3. I was undecided choosing between Cummings or Makris. The deciding factor was the benefit of staying with AAC and the ease of sharing info with Dr Sclafani (who did my last procedure).

Time only for a quick replay.

Some bad news, but more good news overall.

More later.

Donnchadh

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Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

I hope the bad news is not too bad? More good news overall...very cryptic, Donnchadh! Wishing you the best, will wait to hear more.

The sonogram technician is named Colleen, and she was very competent.
Overall, the testing took about a hour. She started by having me lie flat (supine position), and carefully breathing though my mouth. She placed the ultrasound probe at the base of the venous confluence (near the collar bone) on the right hand side and carefully worked her way upwards.
Later, she switched out the ultrasound probe to a trans-cranial version and then placed it just below my cheekbones in order to examine the vertebral veins.

After the right side was completed, she moved the ultrasound machine to my left side and repeated all the steps.

Then I was tested again sitting upright for all the sames sites (right and left sides, down and up the veins).

I asked her how many CCSVI patients she has done now and she said about 25. Colleen went to Brooklyn to learn Dr. Sclafani's (based on Dr. Zamboni's) protocol for a week. She is using the exact same techniques.

So, for us in the mid-west, it is entirely feasible to have a "real" CCSVI ultrasound test. I was impressed how through and efficient she was.
She answered my numerous questions.

Donnchadh

_________________
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

Curious what the bad news & good news were you mentioned in a previous post?

What is the news about the US? You never did say. We are all curious now.
CD

I am waiting on getting a copy of the ultrasound images and report. Will update later.

Donnchadh

_________________
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

Hope all is well, Donnchadh, take care.

ditto. We care

curious if you've received the ultrasound report & if your now able to report on the good/bad news

I head up on the 24th for my US & will return on the 27th of May for the angio is all goes well

NP