jackiejay wrote:so correct me if this is wrong.....the iron in the blood that is refluxing back into the brain leeches into the tissues of the brain and spinal cord initiating the immune system attacks that are associated with MS....having the CCSVI treatment should solve this problem....hence the need for DMD's seems unnecessary....
Exactly. One should feel free to exercise their right of choice, in conjunction with their treating professional, without it coming off as medical advice pro/con or otherwise.
I've stopped my DMD's, plain and simple. That's the risk I alone assume, no explanation needed, no regrets. Whatever some Dr. halfway around the world says about it, who isn't treating me, or anyone else on this board for the most part, is irrelevent.
That being said, he is saying, and has said, what any responsible Dr. would say in that position, "continue on your course of medications because we haven't a clue what all this is about and how it affects or doesn't affect your immune system". Sounds reasonable to me.
If patients want to go off the ranch and do their own thing, that's their responsibility, and their right to say what does or does not go into their body, but should always be done in conjunction with
consulting with the treating physician for that particular medication in the first place.
My neuro didn't have a problem with it at all, wait and see was where we left it.
If other people decide to stay on the DMD's, I think that's great too, if you can afford it and it brings some peace of mind that you are covering the bases, have at it, sounds reasonable too.
But this hand wringing over what people will or will not do based on internet ramblings, is a spurious argument and a misguided attempt to control the uncontrollable.