MANITOBA CLINICAL TRIALS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

MANITOBA CLINICAL TRIALS

Postby thornyrose76 » Tue Apr 05, 2011 1:50 pm

The Manitoba Gov't has pledged 5 million to fund clinical trials of the CCSVI angioplasty. How do clinical trials work and when will this take place? Do some participating in the clinical trial not get the angioplasty but believe that they are? 8)
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Many Questions

Postby fiddler » Tue Apr 05, 2011 3:50 pm

Yes, there are many questions, but the important point is that they are supporting it! Makes me proud to be a native Manitoban!
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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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By the way...

Postby fiddler » Tue Apr 05, 2011 3:51 pm

If someone can send me a link to the press release regarding the Manitoba announcement, I'll put it on my blog.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Postby Blaze » Tue Apr 05, 2011 5:19 pm

Fiddler: Here is a link to the news release:

http://news.gov.mb.ca/news/index.html?a ... item=11189

Here are links to articles in Winnipeg Free Press and Toronto Star:

<shortened url>

<shortened url>

Thornyrose: There are different types of clinical studies. In some, all patients are treated. In a double blind study, which Dr. McDonald is proposing, patients are randomly selected. Some are treated and some are not. Neither knows which group they are in. The neuros who do the follow-up do not know who was treated and who was not. The press release does not say whether the Manitoba study would be double-blinded or not.

A great step forward for Manitoba.

It is frustrating to have a great doc in Ontario like Dr McDonald (and others he is working with) ready and anxious to go with research, but no funding here. It would be great if Ontario would feel pressured into it with Saskatchewan and Manitoba moving forward. Remember. Ontarians, we have a provincial election in October Let's use that to our benefit.
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Postby PointsNorth » Tue Apr 05, 2011 8:48 pm

And possibly an election in BC shortly? Seems like putting pressure on provincial premiers could give us (more) traction? Who needs the Feds?
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Postby jackiejay » Wed Apr 06, 2011 4:46 am

good timing for an Ontario election this fall.....any other party shown any interest in CCSVI?
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Postby Blaze » Wed Apr 06, 2011 5:03 am

jackiejay wrote:good timing for an Ontario election this fall.....any other party shown any interest in CCSVI?


A Conservative MPP began a petition calling for clinical trials in Ontario a few months ago. I'm don't know about NDP provincially.

That's what's so frustrating. Parties in power like Libs in Ontario and BC are resisting treatment and trials. Where Libs are in opposition, they are calling on NDP and Cons in government to act. The NDP and Cons in those provinces (and federal Cons) are resisting.

That's why I remain so skeptical of all of them, except Dr. Kirsty Duncan. Thankfully, Manitoba's NDP government is now joining Saskatchewan (Saskatchewan Party) to get things moving.

I will write to Deb Matthews, Ontario Minister of Health (again!), pointing out Canada's largest province and biggest health-care provider is falling behind provinces like Saskatchewan and Manitoba.

I know Deb Matthews is aware of Dr McDonald because he met with her last year.
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