NO ENERGY AND PROVIGIL....

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

NO ENERGY AND PROVIGIL....

Postby leetz » Tue Apr 05, 2011 8:43 pm

need some tip's or suggestion's for energy....the mS fatigue has taken over my life and I tried provigil and it made me shake even worse than I do without it....anyone have any advice? Thank's!!!!

FORGOT TO ADD: Had CCSVI procedure 20th of Dec. 2010...relief for the first 3 week's then back to square one...fatigue never went away though...had improvement's with gait, balance, stability, spasticity...but no relief from fatigue...
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby Cece » Tue Apr 05, 2011 8:51 pm

How about trying nuvigil? It seems to be a gentler cousin to Provigil, at least in my experience. Or perhaps a half dose of Provigil instead of the full dose?

Otherwise, resting, exercising, eating right, staying cool, getting enough sleep, etc, etc, but I always found that not doing those things could make me worse but doing them never really made me any better.
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Postby leetz » Tue Apr 05, 2011 8:57 pm

many thank's...did not know there was a nuvigil? did the half tab thing with provigil...never worked...thank u for your suggestion's...don't really do anything but pt, doc. appoinment's...yeah that's about it...have minus zero energy!!!!

God Bless you and your's!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby LR1234 » Wed Apr 06, 2011 2:54 am

I know I keep going on about blood thinners but they have helped me soo much. (enoxaparin also has anti inflammatory properties) but long term can cause osteoporosis so you have to be careful. I felt "normal" when taking these for 8 months.
Maybe you could try foods that encourage blood flow/thinner blood??

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Postby leetz » Wed Apr 06, 2011 11:25 am

hey...i am willing to try it...where do i get it?
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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ccsvi

Postby blossom » Wed Apr 06, 2011 1:43 pm

lr1234, being that blood thinners helped you so much, did you ever consider hughe's syndrom? a lot of people with it are misdiagnosed as having ms.. getting tested for it here is the challenge. i get the koo koo look when i try. but england is where i believe dr. hughe's was from. maybe you'd have better luck.
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Postby pklittle » Wed Apr 06, 2011 4:11 pm

I take provigil for sleepiness, which is really not the same as chronic fatigue.

I feel like crap 99% of the time, but at least I am not as sleepy during the day while on provigil.
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Postby 1eye » Wed Apr 06, 2011 4:21 pm

Not giving anyone medical advice, about what to take or not. I take 2 provigil (called alertec here) a day. Sometimes I get to it too late. It does make you sleepless! Not after 5 or so, for me. I want to try going off it, to test my procedure further. I am already off Amantadine, till the next flu season.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby leetz » Thu Apr 07, 2011 11:30 am

am i the only one that get's super shakey when taking provigil???
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby vivavie » Thu Apr 07, 2011 11:51 am

I used to take Alertec (provigil) but only when I had a big activity but the crash after was so bad, even my hair or earings would get on my nerve. I could not stand myself or others... It made me overdo and it took me days to recover after!

It is expensive (for me) and not covered by my insurance, they said it is not appropriated for ms!?!??

Canada medical system = Banana Republica
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Postby leetz » Thu Apr 07, 2011 11:58 am

hey, i must agree with you!!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby Cece » Thu Apr 07, 2011 12:01 pm

It's never been tested on MS patients. It might make our neurons work too hard and hasten neuronal death. Seems possible, doesn't it?

If the drug companies test it for MS patients, then they could market it directly.
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Postby pklittle » Thu Apr 07, 2011 2:01 pm

Cece wrote:It's never been tested on MS patients. It might make our neurons work too hard and hasten neuronal death. Seems possible, doesn't it?

If the drug companies test it for MS patients, then they could market it directly.


I take 7 prescription drugs, and none of them are to treat MS specifically. I take 4 of my meds to treat MS symptoms, but not the horrid disease itself.
There is nothing available for SPMS! 8O :evil:
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