MS Society and smoke screen studies

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

MS Society and smoke screen studies

Postby codefellow » Thu Apr 07, 2011 1:58 pm

So frustrating for us, (but worst of all for
Canadians and Britains!):

MS is an old condition we know very little
about. Its cause is unknown. The treatments
we have for MS do nothing to manage it symptoms.

CCSVI is a newly discovered condition that we
know very little about. Its cause is unknown.
(In fact, there are those who will claim it does
not exist at all.) The treatments we have for CCSVI
can sometimes reverse at least some of the symptoms.
(Assuming the patients who report successes are neither
deluded or lying.)

Enter the MS Society. They
proudly proclaim studies will be funded, followed
by clinical trials, if clinical trials are warranted
by the studies.

So clinical trials will take place if and only if
these studies can successfully link an old condition we
know very little about with a new condition we know
very little about.

Meanwhile, (and this may be exactly the trap we walked right
into), the fundamental question is avoided at all costs: Is there
there any possibility that an angioplasy can help with my MS
symptoms?
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Postby EJC » Thu Apr 07, 2011 3:13 pm

Consider this a small step.

In my mind the fact they have acknowledged CCSVI exists and warrants studies is a step in the right direction.

Sure it's not as quick as we'd like to these things progress, but progress it will.
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Postby 1eye » Thu Apr 07, 2011 6:41 pm

Even if CCSVI does not exist, will treatment of my veins with venoplasty affect my symptoms? I believe (yas, bretheren, I be*lieve*), as a Trial numbering 1, it did. It has been 7 months. Placebo is no longer a possibility. It did.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby CaptBoo » Thu Apr 07, 2011 7:18 pm

yes it did.
<div>There be no dragons   ...Reese Palley</div>
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...and...

Postby codefellow » Thu Apr 07, 2011 10:35 pm

something else (random thought).

Neurologists have had a working theory of MS, on which they based their treatments, the CRAB drugs, for nearly fifty years. In all that time not one MS symptom (such as paralysis of extremities, fatigue, etc) has been remedied by their treatments. They cannot even claim any "placebo" testimonials from their patients.

The vascular specialists have had a new working theory of MS for less than three years now, and (once again assuming the people reporting positive results are neither lying or deluded), and they can claim some spectacular symptom relief in their patients.

It is past time to let the vascular specialists have a crack at treating MS. Less than three years, and they already have a better track record.
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Re: MS Society and smoke screen studies

Postby bruce123 » Fri Apr 08, 2011 5:05 am

codefellow wrote:Meanwhile, (and this may be exactly the trap we walked right
into), the fundamental question is avoided at all costs: Is there
there any possibility that an angioplasty can help with my MS
symptoms?


1eye wrote:Even if CCSVI does not exist, will treatment of my veins with venoplasty affect my symptoms? I believe (yas, bretheren, I be*lieve*), as a Trial numbering 1, it did. It has been 7 months. Placebo is no longer a possibility. It did.


Agreed. it is as simple as that! All the accompanying hypothesis regarding the connection of CCSVI to MS are important, but the findings will not change the fact that a procedure has been discovered that has HUGE benefits for many pwMS.

Bruce.
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