Hi Cece. After reading hundreds of improvement reports here, I am just wondering if there is any MS patients yet who still needs any treatment at all. It seems that drug companies just go bust, all neurologists will retire soon...etc...
All said, I would still have a suggestions. We all see our neurologists once or twice a year at least, so we get a status report at least once or twice a year. We usually get an MRI done once a year. If you do not get it, you can easily ask for it. It costs nothing compared to a CCSVI operation.
So, you got everything about your conditions pre and post operation.
Why can not any organization or CCSVI clinics collect this data? Why no one even post his/her results here?
My understanding was that Dr Z was campaigning for immidiate CCSVI operations in order not to waste time and that data on these operations can be also processed scientific way and therefore we do not have to wait for long clinical trials. So, now, after TWO years of his announcement I do not see any of this. Clinics just think of raking in as much money as they can and they come out with bullshit reports that based on non-scientific self assesments.
I think any patient with a normal sense and who is in contact with her neuro have her medical reports including MRI from the near past. I guess she would visit her neuro in the near future as well. So, what is so hard to get the results?????