Improvement reports : Chronic Cerebrospinal Venous Insufficiency (CCSVI) - Page 14 - This Is MS Multiple Sclerosis Community: Knowledge & Support

View unanswered posts | View active topics

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Improvement reports

Page 14 of 20

[ 289 posts ]

Go to page Previous 1 ... 11, 12, 13, 14, 15, 16, 17 ... 20 Next

Print view

Previous topic | Next topic

Author

Message

Cece

Post subject: 'MS patients seek controversial treatment'

Posted: Wed Jul 27, 2011 7:41 am

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

http://abclocal.go.com/wpvi/story?secti ... id=8261767
#1 -

Quote:

At the time she says she was using a walker and scooter. Afterward -

"My balance improved, my coordination improved. I was able to squat down and stand up again," she says.

#2-

Quote:

"I noticed it yes on the way back to the train," Sam says. "I noticed more mobility, more agility. He seemed more alive."

Sam also says he feels more energetic, and has more mobility in his hands.

A simple task like tying his sneakers, which was a big challenge before the procedure, was much easier afterward.

"I feel like it has made a difference in my life," says Sam.

Top

1eye

Post subject:

Posted: Thu Jul 28, 2011 6:23 am

Family Elder

Joined: Wed Mar 17, 2010 4:00 pm
Posts: 2602
Location: Kanata, Ontario, Canada

A year and a half ago I went to a Christmas party wearing my favorite party shirt, which had short sleeves. When I got home I was embarrassed to see all of my bruises in a mirror. It looked like I had been being abused. It was because of my regular falls. If I fell outside, which even use of the walker could not prevent, I ended up bloody. I guess I had delayed the use of the wheelchair too long. By the new year I was in it full-time. In my defense there wasn't much room for either conveyance, as we were undertaking a house renovation.

I had my procedure in August last year. I haven't fallen more than a handful of times since, hardly at all anymore, and though I still use the walker, I am now a member of a gym, and still moving towards walking.

If anybody has been wondering why I stopped updating my tricycle saga, 3 reasons:

1. the chainwheel fell off while I was on an uphill slope. The trike rolled backwards. Before I knew it, I had rolled off the edge of the path into a ravine. At the bottom my machine and I parted, I took a couple of gashes from the brake disks, and landed head-first on a municipal drain thing. The helmet saved my head and the bushes did the rest. I haven't been on it much since.

2. another excuse is the heat we've been having. Indoors it's air-conditioned. But the weather has turned and I have nothing stopping me now. As soon as I get off the antibiotics for my leg gashes, I'll be clipped on again.

3. I joined a gym, and have been going there instead of my usual stuff.

Peripheral to that, Triana (kinestheologista) drove over, put her bike on top of her car, and when she got home it was gone. No reports of people killed or injured by flying bikes, but no bike found.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Top

Cece

Post subject:

Posted: Sun Aug 07, 2011 7:40 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

A gym seems like such a safe indoors place to be....
But I am sure it is more fun to be out on the trike.

Yikes on the forecast for flying bikes.

Keep us updated 1eye, it is good to hear from you. I imagine your wife worries when you end up with leg gashes?!

Top

Cece

Post subject: 'Grande Prairie Woman A Fan Of CCSVI Treatment '

Posted: Tue Aug 09, 2011 12:37 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

http://tinyurl.com/3mx8stj

Quote:

Since then, she says her headaches are gone, she is not as fatigued as she was before, and she can shower and stand up to get herself ready by herself.

Top

Cece

Post subject: 'My liberation surgery'

Posted: Tue Aug 09, 2011 12:41 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

www.winnipegfreepress.com/breakingnews/ ... 64793.html

Quote:

The next morning while eating breakfast in the hotel room, I looked down and found my normally blue-purple feet were pink.

Quote:

Indeed, during the next few weeks I would see more changes in my symptoms. These changes happened so gradually and incrementally that I barely noticed. It took friends to remark that my speech was clearer; how sweet that they never told me before just how slurred my voice had been.

The pain that made nights intolerable eased; I halved my pain meds and gave up on the hot bag that had been my night-time ritual for years. On the day I hauled my grocery shopping up the stairs, I thopught, "Hmmm. My fatigue is better." And the cognition fog that usually blanketed my awareness lifted enough that my normally skeptical husband commented that I was "funnier" since my procedure.

But by the second-month anniversary of my "liberation," I had still not had the dance with my stepmother that I had promised her. Heading into that third month, things began to slide.

The chronic body pain came back, spreading like a stain from fingertip to toe. I gave up my stubbornness and embraced my pain meds. My feet were back to their familiar violent purple hue.

I can only assume my veins had restenosed or closed in on themselves again. So it seems I spent more than $10,000 to get pinker feet for two months.

Top

Cece

Post subject: 'Multiple Sclerosis patients look for support'

Posted: Tue Aug 09, 2011 12:45 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

www.cochraneeagle.com/2011/08/multiple- ... r-support/

Quote:

Overall, Hegland said it cost her more than $12,000 to travel to Poland for CCSVI treatment but it was worth it.

“It was like a fog being lifted,” she said.

Top

Cece

Post subject: 'Sussex woman finds relief in controversial procedure'

Posted: Tue Aug 09, 2011 2:34 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

http://telegraphjournal.canadaeast.com/ ... le/1429738

Quote:

Prior to the June 21 liberation therapy, Gallagher was not able to walk unaided.

Quote:

She said she regained her sense of balance after the treatment and was able to walk unaided right away. Her fatigue, another common symptom of the disease, continues to lessen.

"And another biggie was the vertigo disappeared," she said. "I used to always feel like I was moving and I don't have that sensation anymore. And my bowel and bladder control are a lot better."

Quote:

A YouTube video by Lisa Gallagher shows the Sussex woman doing a happy dance. Something she couldn't do just a short while ago.

"And look," she says. "I can squat. I can get myself up. I can sit."

Top

Cece

Post subject: Local liberation patient gives thumbs-up to study

Posted: Tue Aug 09, 2011 2:46 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

www.stalbertgazette.com/article/2011073 ... p-to-study

Quote:

“It’s not a big deal. If my husband had a problem with his heart, they would do angioplasty. Just because it’s MS, [they are hesitant]. It wasn’t life threatening. And I saw improvement immediately,” she said.

Quote:

Since undergoing her treatment nearly a year ago, Beaudette said she has noticed some marked differences.

“Now my balance is great — I can shower and I don’t feel like I’m going to fall,” she said, noting that she fell last May, breaking a bone in her arm in three places and requiring a titanium plate and three screws.

Top

Cece

Post subject: Langford family fights to save grandmother with MS

Posted: Sun Aug 14, 2011 6:54 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

www.bclocalnews.com/vancouver_island_so ... 55853.html

Quote:

Earlier this year, Langford resident Lesley Clarke fundraised $10,000 to receive the liberation procedure from a clinic in Seattle. She left in a wheelchair and came back walking and full of energy.

Top

Cece

Post subject: Re: 'MS under observation'

Posted: Tue Aug 16, 2011 8:19 am

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

Cece wrote:

www.ganderbeacon.ca/News/2011-04-27/article-2459290/MS-under-observation/1

Quote:

“Last year this time, I was 32 pounds heavier. I couldn’t walk 60 metres unassisted, without my cane. No clarity of thought. No energy. I wanted to sleep all the time. It was terrible.”

Since his liberation treatment last summer, Mr. Duffy said he feels like a new man.

“Now I don’t ever use the cane, and the muscles that had atrophied have grown back. My energy levels are better than they have been in 20 years, so for me it’s really something.”

http://tinyurl.com/4yxj6rk
A new article featuring a patient already reported in here:

Quote:

Duffy, who was diagnosed with MS almost 20 years ago, said the procedure is painful, but only for a few seconds. He was kept immobile for 12 hours to reduce bleeding, and was discharged the following day.

“The next day, everything was clearer visually, I had more energy, and I was not as tired as I used to be.”

He still has periodic sensory deficits, but feels closer to being the person he was prior to being diagnosed with MS. Duffy no longer takes any medication.

“I can say that I have a new husband,” said Sherry Duffy. “He’s not falling asleep on the couch at 6 p.m. every evening. He has more energy than I do most days .... It’s pretty rough when a lot of household things that should be for couples were my responsibility, but now he’s back.”

Top

Cece

Post subject: 'Now Vickie's giving back'

Posted: Tue Aug 16, 2011 9:04 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

www.stthomastimesjournal.com/ArticleDis ... ?e=3260258

Quote:

"I feel good, I feel really good. I don't have fatigue, I can withstand the heat here now."

Top

Cece

Post subject: 'Brothers raise funds for MS'

Posted: Sat Aug 20, 2011 10:50 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

www.bclocalnews.com/okanagan_similkamee ... 38233.html

Quote:

The boys raised over $2,700, and their mom went to have treatment in Bulgaria in December, 2010. She is doing much better, and believes she would be in a wheelchair had she not had the treatment.

Now she plays soccer with her sons, and even put in a garden that all three of them enjoy together.

Top

Cece

Post subject: 'Edmonton group lobbies faster treatment trials'

Posted: Sat Aug 20, 2011 10:52 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

www.vancouversun.com/news/Edmonton+grou ... story.html

Quote:

Krysteen Fitzgerald, a 29-year-old police officer from the Edmonton area, said she is almost completely back to normal after receiving the treatment. Fitzgerald was partially paralyzed on the right side of her body and was unable to work full-time.

Fitzgerald says she now no longer walks with a limp.

“I went back to running and working,” she said.

Top

Cece

Post subject: 'City MS patients begrudgingly cheer provincial study'

Posted: Sat Aug 20, 2011 10:56 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

www.fortsaskatchewanrecord.com/ArticleD ... ?e=3263636

Quote:

After the procedure, Rosa had immediate feeling back in her hands.

"I was rubbing my fingertips together. The nurse asked me it anything was wrong, and I told her 'it depends on what you mean by wrong, because I feel them'" Rosa said.

Quote:

Before receiving the treatment, Rosa and Pilgrim were both diagnosed secondary progressive.

"It's really humiliating to have someone wash you and dress you because you can't do it yourself," Pilgrim said.

Pilgrim travelled to Costa Rica in October. Prior to receiving treatment, Pilgrim's doctor took her driver's license, due to her state. Pilgrim got her license back in March, 2011. The treatment improved her driving skills, she said.

"I am now totally fit and able to drive," she said proudly. "I'd do it again in a heartbeat."

Quote:

"[Another MS patient who received treatment] can cut his meat now. So can I. He can tie his shoes, so can I. He can shower while standing up. So can I," Rosa said, while talking about the benefits of this treatment. "It's what I can do [now] and what I don't have to do anymore." Rosa said.

Top

Cece

Post subject: New study warns ERs will become clogged with MS patients wh

Posted: Wed Aug 24, 2011 8:12 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

http://tinyurl.com/3hd9zv8

Quote:

Stefanuk will admit CCSVI isn't perfect. He says his sister had the treatment and he would too.

"My sister is 100 per cent better."

Top

Page 14 of 20

[ 289 posts ]

Go to page Previous 1 ... 11, 12, 13, 14, 15, 16, 17 ... 20 Next

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Topics		Author	Replies	Views	Last post
Related topics
	MRI reports?????????	scorpion	12	1404	Tue Sep 01, 2009 3:20 pm Sharon
	About 1/3 see no improvement at all? [ Go to page: 1, 2, 3, 4 ]	sgriff	46	5195	Sun Aug 01, 2010 1:36 pm 1eye
	Almost instant improvement....	tikrtokr	8	1829	Thu Jan 20, 2011 7:05 am bluesky63
	CCSVI Treatment Reports	bonfire	6	1830	Sat Feb 27, 2010 3:20 pm bonfire
	Patient Reports As Evidence	MarkW	9	1747	Thu Feb 03, 2011 8:39 am Cece

Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Jump to: