One year later, MS patients track their progress

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

One year later, MS patients track their progress

Postby MSUK » Sun Apr 10, 2011 10:28 pm

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A year later, five Canadian multiple sclerosis patients have reported their progress to CTV News, and there are positive signs for some from a new MS treatment.

Last year, Lianne Webb was flattened by fatigue -- the result of a decade of living with multiple sclerosis. But 14 months after receiving a highly debated treatment known as liberation therapy, Webb says she feels more energetic than she has in years.

Indeed, on a recent afternoon, she was horseback riding; something that would have been unthinkable before receiving the therapy.... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
MS-UK - http://www.ms-uk.org/
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Re: One year later, MS patients track their progress

Postby griff » Mon Apr 11, 2011 6:03 am

squiffy2 wrote:Image

A year later, five Canadian multiple sclerosis patients have reported their progress to CTV News, and there are positive signs for some from a new MS treatment.

Last year, Lianne Webb was flattened by fatigue -- the result of a decade of living with multiple sclerosis. But 14 months after receiving a highly debated treatment known as liberation therapy, Webb says she feels more energetic than she has in years.

Indeed, on a recent afternoon, she was horseback riding; something that would have been unthinkable before receiving the therapy.... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954


I would assume there were at least another 500 Canadians who went through the CCSVI procedure. What about them? As far as I am concerned, I see more restenosed veins and deteriorating conditions after restenoses here on different threads then long-term sustainable improvements.

If we say CCSVI operation is a "new MS treatment", then please monitor MS symptoms. Many of us got worse after restenoses happened. If clinics do not care about follow-ups and no neurologists are involved in monitoring (in fact no one is monitoring), then how will you know about improvements or deteriorations?
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Postby Blaze » Mon Apr 11, 2011 10:23 am

This article is about the few lucky Canadians who were able to be treated through Dr. McDonald before the College of Physicians and Surgeons forced him to stop. As I understand it, Dr. McDonald did not charge for these procedures. He has has been trying since then to get approval and funding for a trial.

It's time to let Dr. McDonald get on with it--Now!
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