BooBear wrote: I made a comment nearly a year ago that I still stand by.
If CCSVI is the cause of or consequence of MS is irrelevant from a treatment perspective. If there is a condition that requires treatment, treat it.
What kind of condition? Just because you have a vein partially stenosed that does not justifies an operation. Ask some IRs and vascular surgeons who are not living from our money. That makes the debate that we do not know if it helps us the long-term or not. Don't get blindsided.
So why issue with this treatment?
IMO, it's because correcting the blood flow alleviates a lot of symptoms very quickly. It's because we, the captive customer base, are able to make some rather significant choices on our treatments and lives.
unfortunatelly, the captive customer base is a desperate customer base.
You should know that the major problems are the complications after operation and the long-term effct of the operation. These veins have never been treated before and we can see lots of complications. Veins get collapsed, scarring, intimal hyperplasia, etc. Many patients experienced initial improvements, then after a few months their conditions got worse than before.
The empowerment of this community scares those that have come to depend (financially, emotionally, substantially) on the dependence of these patients. When I can choose to live drug-free, I just impacted someone's financial statements. When I can make a choice at all, I just impacted a doctor's self-imposed importance in my life.
I wish we would be at that stage, but lets face reality.
At the end of the day, this is freaking simple.
The condition exists.
Treatment makes us feel better.
Deal with that.
Move the frick on.
Unfortunatelly, things are not that simple. Wake up!