This Is MS Multiple Sclerosis Community: Knowledge & Support

Don't know how important this is, but have just had an e-mail detailing that NICE is looking into the issues, they deem what should be done on NHS etc
http://guidance.nice.org.uk/IP/891

will anyone enlighten us to what, if any signicance this is??

Thanks [/url]

This is highly significant for UK. I would hope that CCSVI-UK organisation co-ordinates responses. I will submit to NICE personally.

MarkW

edited to correct grammar, then spelling.

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

NICE is the UK govering body for procedures

It was CCSVI-Uk that have initiated this, though not connected with MS, they have assumed this is connected???

Who initiated this investigation by NICE ? MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

I first reported this last August:


and you replied, Mark...
http://www.thisisms.com/ftopic-13240-0- ... -nice.html

I hope this means they are continuing the monitoring,
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Hello Cheer,
I have written for an influential newspaper but not submitted the dossier of data I would expect that NICE require. Are EHC behind this??? I suspect from the wording that an anti CCSVI group has asked for this NICE investigation in order to block simple balloon venoplasty or even testing in UK.

I will dig during the coming weeks.

MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

See my last post Mark, not EHC

If CCSVI-UK started this investigation you/they have shot themself in one foot with the title of the investigation. Referring to stents plays into the neuros hands by allowing them to cite patient deaths.
If NICE blocks balloon venoplasty then CCSVI in the UK will be set back 3-5 years.
If the person who submitted the investigation wants advice just get them to contact me. I worked as a pharmaceutical consultant for many years so have a basic knowledge of NICE.

MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html