NICE (UK) publishes Info and looks into CCSVI

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NICE (UK) publishes Info and looks into CCSVI

Postby steviebhoy » Fri Apr 15, 2011 6:57 pm

Don't know how important this is, but have just had an e-mail detailing that NICE is looking into the issues, they deem what should be done on NHS etc
http://guidance.nice.org.uk/IP/891

will anyone enlighten us to what, if any signicance this is??

Thanks :D [/url]
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Highly Significant

Postby MarkW » Sat Apr 16, 2011 3:41 am

This is highly significant for UK. I would hope that CCSVI-UK organisation co-ordinates responses. I will submit to NICE personally.

MarkW

edited to correct grammar, then spelling.
Last edited by MarkW on Sat Apr 16, 2011 8:35 am, edited 2 times in total.
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Re: NICE (UK) publishes Info and looks into CCSVI

Postby silverbirch » Sat Apr 16, 2011 4:00 am

steviebhoy wrote:Don't know how important this is, but have just had an e-mail detailing that NICE is looking into the issues, they deem what should be done on NHS etc
http://guidance.nice.org.uk/IP/891

will anyone enlighten us to what, if any signicance this is??

Thanks :D [/url]


NICE is the UK govering body for procedures
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Postby steviebhoy » Sat Apr 16, 2011 7:22 am

It was CCSVI-Uk that have initiated this, though not connected with MS, they have assumed this is connected???
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Please Explain

Postby MarkW » Sat Apr 16, 2011 8:38 am

Who initiated this investigation by NICE ? MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby cheerleader » Sat Apr 16, 2011 8:47 am

I first reported this last August:
National Institute for Health and Clinical Excellence (NICE) in the UK is monitoring progress and interest in angioplasty for CCSVI-
(This is a 180 from the official stance on "widening veins will not help pwMS" made last December--)

For UK residents to Register Interest:

http://guidance.nice.org.uk/IP/891

cheer


and you replied, Mark...
http://www.thisisms.com/ftopic-13240-0- ... -nice.html

I hope this means they are continuing the monitoring,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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NICE Investigation !!

Postby MarkW » Sat Apr 16, 2011 9:02 am

Hello Cheer,
I have written for an influential newspaper but not submitted the dossier of data I would expect that NICE require. Are EHC behind this??? I suspect from the wording that an anti CCSVI group has asked for this NICE investigation in order to block simple balloon venoplasty or even testing in UK.

I will dig during the coming weeks.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby steviebhoy » Sat Apr 16, 2011 2:23 pm

See my last post Mark, not EHC
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Process Is Critical

Postby MarkW » Sun Apr 17, 2011 5:59 am

If CCSVI-UK started this investigation you/they have shot themself in one foot with the title of the investigation. Referring to stents plays into the neuros hands by allowing them to cite patient deaths.
If NICE blocks balloon venoplasty then CCSVI in the UK will be set back 3-5 years.
If the person who submitted the investigation wants advice just get them to contact me. I worked as a pharmaceutical consultant for many years so have a basic knowledge of NICE.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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