Major decision please read......
- Coolcatcarrie
- Family Member
- Posts: 79
- Joined: Sun Jun 20, 2010 2:00 pm
- Location: Near Bath, UK
- Liberation
- Family Elder
- Posts: 339
- Joined: Fri Jan 07, 2011 3:00 pm
I keep wondering what is different about Dania's case because no one else has had 2 veins rendered unusable, let alone 3. Bulgaria was early in being aggressive, with people complaining that it hurt more. Could the aggressive ballooning plus the hypercoaguability disorder have caused this.
I agree Liberation that it would be good to know how often scarring occurs. The word was not even in the vocab here at TIMS last summer.
I agree Liberation that it would be good to know how often scarring occurs. The word was not even in the vocab here at TIMS last summer.
- 1eye
- Family Elder
- Posts: 3780
- Joined: Wed Mar 17, 2010 3:00 pm
- Location: Kanata, Ontario, Canada
- Contact:
Yes. I agree. Do what you, and you alone decide. You can blame me all you want later if that is any help, and you need someone to pin it on, but we all get to live with ourselves. If you get a rose garden, great. Like I said elsewhere, I'm thinking whatever you get will be worth more and last longer the longer you are willing to work on it and wait for it to heal.
Last edited by 1eye on Mon Apr 18, 2011 8:05 am, edited 1 time in total.
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
I guess everyone is different. No rule of thumb applies here.Liberation wrote:It would be good to know how often scarring occurs. The main concept was that we have to go for venogram several times as restenoses will always happen.dania wrote:Bulgaia the first 2 times. Third time with Dr Siskin and last time with Dr Arata. It is not the place. Dr Siskin told me every time you do a venogram you do a little damage to the wall of the vein. Hence scarring.Coolcatcarrie wrote:Oh no dania! Where were u treated? X
- Coolcatcarrie
- Family Member
- Posts: 79
- Joined: Sun Jun 20, 2010 2:00 pm
- Location: Near Bath, UK
- MegansMom
- Family Elder
- Posts: 200
- Joined: Sun Aug 22, 2010 2:00 pm
- Location: Central FL ( near Ocala)
- Contact:
According to Zamboni the earlier the intervention the better the outcome. That is why my daughter decided to get treated early.
She was diagnosed with CIS (early MS) August 19, 2010, and had her liberation Sept 21, 2010.
She works full time, is mom to an active 12 yr old and works out at the gym 3 x a week.
She quit smoking, eats a very healthy diet and makes sure she stays hydrated.
No signs of restenosis have occured.
It still quit early but she has no regrets.
So even if you decide not to have valvuloplasty or venoplasty...
Quit smoking, get regular exercise, stay hydrated and follow the vascular health diet.... These things can make the difference.
She was diagnosed with CIS (early MS) August 19, 2010, and had her liberation Sept 21, 2010.
She works full time, is mom to an active 12 yr old and works out at the gym 3 x a week.
She quit smoking, eats a very healthy diet and makes sure she stays hydrated.
No signs of restenosis have occured.
It still quit early but she has no regrets.
So even if you decide not to have valvuloplasty or venoplasty...
Quit smoking, get regular exercise, stay hydrated and follow the vascular health diet.... These things can make the difference.
Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
LR1234, this is the best summary I have read so far, it's great.
I would also like to add that everybody (including the treating doctors) are still learning which makes me think that the procedure itself, the pre-screening and post procedure protocol will be evolving too.
My point is I would NOT do anything today if I had minimal disability.
I would also like to add that everybody (including the treating doctors) are still learning which makes me think that the procedure itself, the pre-screening and post procedure protocol will be evolving too.
My point is I would NOT do anything today if I had minimal disability.
- numbness23
- Family Member
- Posts: 41
- Joined: Tue Feb 15, 2011 3:00 pm