codefellow wrote:Have you been tested?
Our plan is, when we are ready, she gets tested ONLY.
We will wait for the test results and THEN decide what to do next.
Every day, the IR's treat yet another brave pioneer and they learn a little more, refine the technique a little better. Some may even find new ways to reduce the rates of restenosis without stents.
FWIW, I agree with those who think you should wait.
But if possible, keep the appointment and only get tested for now.
Just stick your toe in the water before you dive in with your whole body!
Your post pretty much sums up how I'm feeling at this point in time. I have felt from the beginning that I will undoubtedly have an issue in my veins & was not even inclined to get tested (DU). I have had to pass up a few opportunities to be tested/treated by Dr. Sclafani b/c of my husband's overseas work schedule & my wish that he be able to come with me. Truthfully, I was a little bothered by testing & treatment following the day after - way too fast for me. I finally decided that I would go to Barrie, ON to have the DU, and then as you say 'decide what to do next'. So, I've just 'dipped my toe'.... Had my DU done by Angie last week in Barrie, ON. The results have not arrived in my mailbox yet. I reside in Canada, so the bonus... if/when I 'dive in', I will hopefully have a place to go for follow-up here in Canada after becoming a patient at this center...???? It feels like baby-steps somedays and other days, I feel that I'm best to wait.... so much is happening & changing. Restenosis &/or clots scare the crap out of me. I certainly teeter back & forth about how I should approach this & my very wise spouse keeps telling me that only I can make this choice for myself. He has listened to HOURS of me yammering on about CCSVI & if he has an opinion of what my choice should be.... he has never voiced it one way or another. I know I will have his support no matter how I proceed - just wish I had a crystal ball and I'm certainly grateful that my condition is such that I can take the time that I feel that I need to take. It is certainly not an easy choice & none of us wants to live with any regrets, would-haves or should-haves.....