This Is MS Multiple Sclerosis Community: Knowledge & Support

The Montel interview we are referring to was online only:
http://www.doctoroz.com/videos/montels-own-procedure

CCSVI Alliance has issued a clarification statement--attempting to clear up some of the incorrect information.

https://www.facebook.com/notes/ccsvi-al ... 2083980493

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

okay thanks!

Cheer posted:
Dr. Galeotti referred to the venoplasty as "liberating" the blood flow...and this procedure was dubbed the Liberation Procedure in this publication--
http://www.direct-ms.org/sites/default/files/Zamboni%20CCVI%20treatment%20liberation%2009.pdf
Dr. Dake didn't like that term...said it's just venoplasty.
we're trying, Mark...it's not easy.
cheer

I appreciate that the CCSVI alliance does not use the 'L' word. It is still widely used in Canada by CCSVI advocates and I feel it is part of the media problem in Canada.

I realise that West Coast US clinics do not use IVUS on all or most patients. My understanding is that this could mean some instances of CCSVI syndrome are missed. I hope that CCSVI Alliance will consider venograms and IVUS in combination as being the gold standard diagnosis before too long.
Kind regards,
MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

Mark, It is the media that has caught on to the word Liberation here in Canada. They also use words such as "controversial", "experimental" and "cure". There is no better journalism than sensationalism - we now are seeing much less reporting because (thank goodness) nobody has died recently. I don't feel that it is fair to say that it is CCSVI advocates.

When I see Canadian media I hear the 'L' word and no strong reaction from CCSVI advocates like the strong message in Montel's interview. This may not be fair but it is my view from across the pond. Life is not fair, we have MS....................
MarkW

_________________
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

Is that it? Only 5 minutes? Did I miss something?


NHE

You missed nothing, NHE. What was supposed to be an entire show on MS and the CCSVI treatment (the testing, treatment procedure and doctor interviews were filmed in CA) ended up as an error-filled "interview" shown only on-line. Honestly, not surprised...but it's still disheartening. Onward...
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Yes, onward indeed...

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

error filled and "only viewed online " ???..... yes .... some factual errors .... but only those following the CCSVI story as it grows ..... will catch them.

As far as being disappointed because it was " only viewed online " ..... this makes me laugh .

Ringleader , who get's the news on TV ? Grandma ? Grandpa ? The whole damn world is "online ". That is - exactly - where CCSVI news needs to be. And now IS.

Dr.Oz and Montel Williams did a fine job bringing CCSVI as a treatment for MS , to the attention of untold thousands .... if not millions ......... of people previously unaware of this incredible medical discovery.

Want some GREAT news ? I read this on the " internets" .... not the telly-vision ...

There has been a MAJOR medical breakthrough in the treatment of Cystic Fibrosis ... you can read about it in the New England Journal of Medicine . The drug is called " Kalydeco ".

This drug has produced terrific help for about 4 % of CF patients. And they have an ongoing Trial..... that looks promising for the other 96 %. It is worth reading.

Anybody still interested in damning Big Pharma research dollars spent ?


Mr.Success

A greater % of people will happily sit through whatever the TV pumps out. Online, the majority of the time the person has to be looking for that something. On prime time TV, it would of been a huge benefit.

I would say not, it is only the rich in developed countries. There are a lot of people in India, and many can not afford to be online. And a lot of those (not people from india, the world in general) that are online are searching for porn, just read the statistics from google.

TV would bring it into the general public's awareness more. This weekend there is a fund raising event of a bike ride from Sydney to Wollongong (100km down the coast) I would bet it would be the minority involved that would know of CCSVI, and that would include people with MS.

my wife is in Arizona at a motivational conference where Montel is speaking. She said he looks amazing and really is trying to help people in so many different ways and organizations. He is helping so many others like soldiers, etc...I really think this is what is keeping him going...helping others..I need to start thinking more along these lines. Maybe giving it out will in turn send some back?

I say this with little knowledge about Dr.Oz and Montel Williams ........

Everyone has it. Our REPUTATIONS. Including Dr.Oz and Mr.Williams .

I can say with great confidence .... that if CCSVI was in anyway sketchy ,
both of these gentlemen would have given it a pass. Instead , they have
used their position in the television world ...... to bring CCSVI to the attention
of a great many viewers , that TRUST their judgement.

In Mr.Williams case , he provided first hand testimonial evidence of improvements
in his MS symptoms . Better heat intolerance. Ataxia improvements . All Post CCSVI treatment. Many others report significant results.

Which brings me to this.....

Several years ago ..... a small group of pwMS ventured to Stanford University. They took part in a small CCSVI study and treat experimental program. One of these pwMS was a young gregarious and couragous man from Michigan.

Upon returning home , this gentleman reported here on TIMS , that not only had his walking improved .... he was able to till the soil in his garden , using a power tiller. [ aka rototiller ] . I called him on this . Not possible.

well ...... years later ..... and after all we have learned .... I have no doubt whatsoever , that he was indeed experiencing the effects of a return of normal blood flow in his body.

It is my understanding that sad to say .... the improvements were short term .

We cannot thank Dr.Oz , Mr.Williams and " L" ..... enough for being great CCSVI pioneers.



Mr.Success

Has anyone heard anything from Montel about how he is feeling? Just curious. I checked his FB page but there isn't a lot of discussion.

i saw him on dr. oz not long ago. he talked about his treatment some. he said it's no cure BUT for him it took away his heat intolerence "which was holding" and he is now able to bend over and not fall over "which is holding". he is excited about it and the research.

He also said that if his doctor said he needed it done again, he would absolutely do it again.
I think the Dr. Oz web clip was about 3 months post-treatment.