Montel's announcement

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Re: Montel's announcement

Post by cheerleader »

The Montel interview we are referring to was online only:
http://www.doctoroz.com/videos/montels-own-procedure

CCSVI Alliance has issued a clarification statement--attempting to clear up some of the incorrect information.

Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
erinc14
Family Elder
Posts: 599
Joined: Sat Jun 12, 2010 2:00 pm
Location: Montreal

Re: Montel's announcement

Post by erinc14 »

okay thanks!
User avatar
MarkW
Family Elder
Posts: 1167
Joined: Thu Oct 19, 2006 2:00 pm
Location: Oxfordshire, England
Contact:

The 'L' word

Post by MarkW »

Cheer posted:
Dr. Galeotti referred to the venoplasty as "liberating" the blood flow...and this procedure was dubbed the Liberation Procedure in this publication--
http://www.direct-ms.org/sites/default/ ... n%2009.pdf
Dr. Dake didn't like that term...said it's just venoplasty.
we're trying, Mark...it's not easy.
cheer

I appreciate that the CCSVI alliance does not use the 'L' word. It is still widely used in Canada by CCSVI advocates and I feel it is part of the media problem in Canada.

I realise that West Coast US clinics do not use IVUS on all or most patients. My understanding is that this could mean some instances of CCSVI syndrome are missed. I hope that CCSVI Alliance will consider venograms and IVUS in combination as being the gold standard diagnosis before too long.
Kind regards,
MarkW
Mark Walker - Oxfordshire, England. Retired Industrial Pharmacist. 24 years of study about MS.
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
User avatar
Hooch
Family Member
Posts: 57
Joined: Thu Feb 18, 2010 3:00 pm

Re: Montel's announcement

Post by Hooch »

Mark, It is the media that has caught on to the word Liberation here in Canada. They also use words such as "controversial", "experimental" and "cure". There is no better journalism than sensationalism - we now are seeing much less reporting because (thank goodness) nobody has died recently. I don't feel that it is fair to say that it is CCSVI advocates.
User avatar
MarkW
Family Elder
Posts: 1167
Joined: Thu Oct 19, 2006 2:00 pm
Location: Oxfordshire, England
Contact:

Montel said 'it is not liberation'

Post by MarkW »

When I see Canadian media I hear the 'L' word and no strong reaction from CCSVI advocates like the strong message in Montel's interview. This may not be fair but it is my view from across the pond. Life is not fair, we have MS....................
MarkW
Mark Walker - Oxfordshire, England. Retired Industrial Pharmacist. 24 years of study about MS.
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
User avatar
NHE
Volunteer Moderator
Posts: 6221
Joined: Sat Nov 20, 2004 3:00 pm
Contact:

Re: Montel's announcement

Post by NHE »

cheerleader wrote:The Montel interview we are referring to was online only: http://www.doctoroz.com/videos/montels-own-procedure
Is that it? Only 5 minutes? Did I miss something? :eh:


NHE
User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Re: Montel's announcement

Post by cheerleader »

NHE wrote:
cheerleader wrote:The Montel interview we are referring to was online only: http://www.doctoroz.com/videos/montels-own-procedure
Is that it? Only 5 minutes? Did I miss something? :eh:
NHE
You missed nothing, NHE. What was supposed to be an entire show on MS and the CCSVI treatment (the testing, treatment procedure and doctor interviews were filmed in CA) ended up as an error-filled "interview" shown only on-line. Honestly, not surprised...but it's still disheartening. Onward...
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
CureIous
Family Elder
Posts: 1260
Joined: Tue Jul 14, 2009 2:00 pm
Location: Riverside, CA
Contact:

Re: Montel's announcement

Post by CureIous »

Yes, onward indeed...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
MrSuccess
Family Elder
Posts: 922
Joined: Fri Sep 18, 2009 2:00 pm

Re: Montel's announcement

Post by MrSuccess »

error filled and "only viewed online " ???..... yes .... some factual errors .... but only those following the CCSVI story as it grows ..... will catch them.

As far as being disappointed because it was " only viewed online " ..... this makes me laugh .

Ringleader , who get's the news on TV ? Grandma ? Grandpa ? The whole damn world is "online ". That is - exactly - where CCSVI news needs to be. And now IS.

Dr.Oz and Montel Williams did a fine job bringing CCSVI as a treatment for MS , to the attention of untold thousands .... if not millions ......... of people previously unaware of this incredible medical discovery.

Want some GREAT news ? I read this on the " internets" .... not the telly-vision ... :razz:

There has been a MAJOR medical breakthrough in the treatment of Cystic Fibrosis ... you can read about it in the New England Journal of Medicine . The drug is called " Kalydeco ".

This drug has produced terrific help for about 4 % of CF patients. And they have an ongoing Trial..... that looks promising for the other 96 %. It is worth reading. :idea:

Anybody still interested in damning Big Pharma research dollars spent ? :evil:


Mr.Success
User avatar
CureOrBust
Family Elder
Posts: 3374
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Re: Montel's announcement

Post by CureOrBust »

MrSuccess wrote:As far as being disappointed because it was " only viewed online " ..... this makes me laugh .
A greater % of people will happily sit through whatever the TV pumps out. Online, the majority of the time the person has to be looking for that something. On prime time TV, it would of been a huge benefit.
MrSuccess wrote:Ringleader , who get's the news on TV ? Grandma ? Grandpa ? The whole damn world is "online ". That is - exactly - where CCSVI news needs to be. And now IS.
I would say not, it is only the rich in developed countries. There are a lot of people in India, and many can not afford to be online. And a lot of those (not people from india, the world in general) that are online are searching for porn, just read the statistics from google.

TV would bring it into the general public's awareness more. This weekend there is a fund raising event of a bike ride from Sydney to Wollongong (100km down the coast) I would bet it would be the minority involved that would know of CCSVI, and that would include people with MS.
User avatar
THEGREEKFROMTHED
Family Elder
Posts: 162
Joined: Sat Mar 27, 2010 3:00 pm

Re: Montel's announcement

Post by THEGREEKFROMTHED »

my wife is in Arizona at a motivational conference where Montel is speaking. She said he looks amazing and really is trying to help people in so many different ways and organizations. He is helping so many others like soldiers, etc...I really think this is what is keeping him going...helping others..I need to start thinking more along these lines. Maybe giving it out will in turn send some back?
User avatar
MrSuccess
Family Elder
Posts: 922
Joined: Fri Sep 18, 2009 2:00 pm

Re: Montel's announcement

Post by MrSuccess »

I say this with little knowledge about Dr.Oz and Montel Williams ........

Everyone has it. Our REPUTATIONS. Including Dr.Oz and Mr.Williams .

I can say with great confidence .... that if CCSVI was in anyway sketchy ,
both of these gentlemen would have given it a pass. Instead , they have
used their position in the television world ...... to bring CCSVI to the attention
of a great many viewers , that TRUST their judgement.

In Mr.Williams case , he provided first hand testimonial evidence of improvements
in his MS symptoms . Better heat intolerance. Ataxia improvements . All Post CCSVI treatment. Many others report significant results.

Which brings me to this.....

Several years ago ..... a small group of pwMS ventured to Stanford University. They took part in a small CCSVI study and treat experimental program. One of these pwMS was a young gregarious and couragous man from Michigan.

Upon returning home , this gentleman reported here on TIMS , that not only had his walking improved .... he was able to till the soil in his garden , using a power tiller. [ aka rototiller ] . I called him on this . Not possible.

well ...... years later ..... and after all we have learned .... I have no doubt whatsoever , that he was indeed experiencing the effects of a return of normal blood flow in his body.

It is my understanding that sad to say .... the improvements were short term .

We cannot thank Dr.Oz , Mr.Williams and " L" ..... enough for being great CCSVI pioneers.



Mr.Success
User avatar
cathyb
Family Member
Posts: 63
Joined: Tue Dec 29, 2009 3:00 pm
Contact:

Re: Montel's announcement

Post by cathyb »

Has anyone heard anything from Montel about how he is feeling? Just curious. I checked his FB page but there isn't a lot of discussion.
User avatar
blossom
Family Elder
Posts: 1394
Joined: Thu Dec 03, 2009 3:00 pm
Location: south western pa.
Contact:

Re: Montel's announcement

Post by blossom »

i saw him on dr. oz not long ago. he talked about his treatment some. he said it's no cure BUT for him it took away his heat intolerence "which was holding" and he is now able to bend over and not fall over "which is holding". he is excited about it and the research.
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: Montel's announcement

Post by Cece »

He also said that if his doctor said he needed it done again, he would absolutely do it again.
I think the Dr. Oz web clip was about 3 months post-treatment.
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”