Montel's announcement

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby PCakes » Thu May 26, 2011 6:26 am

Montel Williams
I have some exciting news about CCSVI and my journey with MS to share with everyone soon.
12 hours ago · Like · Comment

http://www.facebook.com/MontelWilliamsFan
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Postby PCakes » Thu May 26, 2011 6:36 am

This is one of the responses...
Michelle Bishop Mind me asking - what is CCSVI ? What does CCSVI / NMSS stands for?
11 hours ago · 1 personLoading...

...to which someone replied .."check out CCSVI.org" :)

and another..
Matt Bugaj i had the surgery done 3 months ago. on the surface, it would appear there is little benefit. beneath the surface, though, i have more endurance. my legs are completely mangled, but however they are when i get up from resting, they will ...maintain that pace and steadiness until i have worn out my weakest muscles. CCSVI, chiropractic, homeopathic herbs, acupuncture, MG-33 magnetics, Swank diet, and a positive attitude are SLOWLY improving me. have faith, perseverance, and patience. rome wasn't built in a day!
11 hours ago · 3 peopleLoading...
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Postby Cece » Thu May 26, 2011 6:43 am

Montel has a large platform and a loud voice and if CCSVI works for him, he will use that platform and that voice! It kills me that most pwMS in the US don't know about CCSVI.

Exciting news about CCSVI to share...previously he was tested to see if he was a candidate, so the next step would be treatment.

Voice and platform aside, I hope it works for him as I hope it works for anyone who goes for it. He appears to have held up very well against this disease but it is still an awful disease.

Go, Montel!! :)
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Postby PCakes » Thu May 26, 2011 6:44 am

and another..
Vicki Johnson cant wait to hear as well, Ive asked my neurologist his thoughts on ccsvi...he kinda blew it off-- how do i get checked for this in new jersey.??? I have the cold feet--fingers turn white/no blood flow--have had dvt's in my legs--feet turn purple--i know i have blood flow issues??
33 minutes ago

New Jersey!! lucky girl! she's certainly in the right neighbourhood ;)
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Postby THEGREEKFROMTHED » Thu May 26, 2011 7:08 am

Boy he's really going to play this one though isnt he? Just come out with it and tell us what the hell your going to do Montel! Stress exacerbates my symptoms.
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Postby carollevin » Thu May 26, 2011 11:21 am

I am certainly curious to hear about Montel's decision. I recall a month or two ago when he wrote that he was tested by Dr. Dake. Now it appears just in the past 17 hours he wrote again that he has some exciting news to share about CCSVI and his MS journey. Of course we are left to wonder did he get treatment or decide to get treatment?

As others indicated, he is only one man. As we know, CCSVI treatment does not work for everyone, so us relying on his results to put this in the public eye could work for or against the CCSVI treatment sentiment going on right now.

Although I recognize he is only one person, I am excited to hear what his next post will be about this exciting news he has to share on the topic.
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Postby bohemianbill » Thu May 26, 2011 5:06 pm

THEGREEKFROMTHED wrote:Boy he's really going to play this one though isnt he? Just come out with it and tell us what the hell your going to do Montel! Stress exacerbates my symptoms.


its entertainment, lets hope Montel is ahead of the curve.
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Postby CD » Thu May 26, 2011 7:42 pm

Maybe he's waiting for the drum roll. :) He will get so many hits on his website and Facebook. People will read his story, read about the books he writes, his exercise and diet menus too.

He's great at being a mystery man. I wish him well, but I hate suspense. :wink:
CD
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
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Postby MegansMom » Fri May 27, 2011 9:45 am

Quite frankly I find the drama self-serving! Just spit it out Montel.
Cat (Catherine Somerville on FB)
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My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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Postby Cece » Mon Jun 06, 2011 11:28 am

'Soon' is taking rather long.
LOL about the self-serving drama! It is only drama to us, the CCSVI crowd! :)
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Postby Cece » Fri Jun 10, 2011 5:55 pm

This was posted yesterday:
Renee McFerrin Brooks asked:
Montell, When are you going to talk about ccsvi? or really Angioplasty of the neck veins?
Montel Williams ‎@Soon Renee- still gathering information

www.facebook.com/MontelWilliamsFan
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Postby Trish317 » Wed Jun 15, 2011 11:05 am

http://am.blogs.cnn.com/2011/06/15/mont ... l-surgery/

Only a brief mention of "a procedure coming up" at the very end of the interview.
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Postby PointsNorth » Wed Jun 15, 2011 12:12 pm

Suddenly nothing happened.

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Postby EJC » Wed Jun 15, 2011 1:06 pm

Cut and pasted from the website. Article dated June 15th


For more than a decade, Emmy Award-winning television personality Montel Williams has publicly battled Multiple Sclerosis. Williams was diagnosed with MS, a potentially debilitating autoimmune disease that affects the brain and spinal cord, in 1999 and has since campaigned to increase awareness of the disease.

Williams has openly touted the use of medical marijuana and recently announced his involvement in a medical marijuana consulting company. He is a proponent of fully legalizing the use of marjijuana. At the end of the month, Williams will undergo experimental surgery to correct chronic cerebrospinal venus insufficiency (CCVI), a condition associated with MS.

Williams joins American Morning to discus MS, the use of medical marijuana and his upcoming experimental surgery.
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Postby Cece » Wed Jun 15, 2011 1:15 pm

This is great news. He is being so open about this. I would have expected to hear about it after he'd had the procedure (and then only if it were successful). This way is better. Go, Montel!!

An article:
www.newsreview.com/sacramento/montel-wi ... id=2342646
And the extreme: Williams will undergo a non-FDA-approved chronic cerebro-spinal venous insufficiency surgery later this year. He explains that doctors will install stents in the veins along the neck that drain the central nervous system. He is optimistic, but conveys that recovery might be scary.

Yet he feels an obligation to what he estimates are the 4 million MS sufferers worldwide. “I didn’t ask to be the MS guinea pig of the world,” he says, “but everybody’s asking me.”

Doctors will install stents? Recovery is scary?
I will wish for him no stents and an easy recovery with no complications and many improvements.
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