I was able to go to the Hubbard Conference (yea) and one thing this discussion reminds me of is learning how many numbers have not yet rolled in.
I believe it was Dr. Ponec's lecture that discussed the # of patients "successful" with the procedure (I believe it was folks who noticed a moderate improvement or greater). The problem came in if you noticed how many patients had not yet returned the surveys. I asked him at lunch if he assumed (to be on the safe side) that all of the unreturned surveys were negative, would angioplasty still show enough positive responders to be statistically significant. The answer? Probably not, but he hoped they would not all be negative.
I encouraged him and the Hubbards to be proactive in calling these people to see how they are doing. Without those numbers, we are in the dark to a great degree. He heartily agreed -- I hope Dr. Hubbard follows through on that.
The only disappointing thing I noticed that day was that out of all of the patients there, none of them had improved motor function -- only cognitive function and improvements in fatigue (which is GREAT, don't get me wrong!). It did make sense, though, that we can't create myelin immediately, but we can improve the supply of oxygen to our brains immediately. Oh, and Bluesky, Dr. Dake discussed a tinnitus patient who was stented on the contralateral side, and the tinnitus went away on the table. He said that is typical for tinnitus. Wow.
Special interest in "brain drains" and how they affect numerous conditions, including MS, Ehlers-Danlos, Parkinson's, Alzheimer's, etc. I am a therapeutic optometrist on professional disability with EDS, POTS, CCSVI, mast cell disea