The situation in the UK

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

The situation in the UK

Postby Dovechick » Wed Apr 20, 2011 5:57 am

Here is what is going on in the UK at the moment. We have made a video commentary on a recently aired programme on the BBC. Steep learning curve in the technical skills area.
http://www.youtube.com/watch?v=QMYu_-ejOvE
Michele
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby SarahLonglands » Wed Apr 20, 2011 6:26 am

Michèle, how is Ella doing now? You haven't posted about her for a long while.......................Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Cause of MS is unknown

Postby MarkW » Fri Apr 22, 2011 2:41 pm

Everyone who studies MS etiology learns that the cause of MS is unknown. Even neuros accept this before they talk of auto-immunity.
So why Michelle do you present vascular factors as being the cause of MS ?? I listened to your critique and mainly remembered the word 'liberation' as the most repeated one, why ?

The simple message for the UK is:
- CCSVI is a syndrome defined by Prof Zamboni.....
- If pwMS are treated using balloon venoplasty their MS progression slows and in many cases reversal of MS symptoms occurs.
- CCSVI treatment should be available privately to pwMS who cannot be offered drug therapy.

A simple focussed message is best.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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