The situation in the UK

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

The situation in the UK

Postby Dovechick » Wed Apr 20, 2011 4:57 am

Here is what is going on in the UK at the moment. We have made a video commentary on a recently aired programme on the BBC. Steep learning curve in the technical skills area.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby SarahLonglands » Wed Apr 20, 2011 5:26 am

Michèle, how is Ella doing now? You haven't posted about her for a long while.......................Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Cause of MS is unknown

Postby MarkW » Fri Apr 22, 2011 1:41 pm

Everyone who studies MS etiology learns that the cause of MS is unknown. Even neuros accept this before they talk of auto-immunity.
So why Michelle do you present vascular factors as being the cause of MS ?? I listened to your critique and mainly remembered the word 'liberation' as the most repeated one, why ?

The simple message for the UK is:
- CCSVI is a syndrome defined by Prof Zamboni.....
- If pwMS are treated using balloon venoplasty their MS progression slows and in many cases reversal of MS symptoms occurs.
- CCSVI treatment should be available privately to pwMS who cannot be offered drug therapy.

A simple focussed message is best.

Mark Walker - Oxfordshire, England. Retired Pharmacist. 16 years of study about MS.
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