munchkin wrote:Bruce123, do you know if your wife restenosised (sp?)?
bruce123 wrote:munchkin wrote:Bruce123, do you know if your wife restenosised (sp?)?
We have struggled with what to do about that question. We are in Canada and returning to Albany is possible, but not easy. Going to the only Canadian location that we can trust for CCSVI scanning (Barrie, Ontario) is also an option but is quite a drive and is still expensive.
After much research I realized that the CCSVI scanning would only tell us if the FLOW was bad but it wouldn't tell us if there was clotting. Clotting is what we are worried about. Further research found that scanning for clots is done regularly for varicose veins in the legs and this test would be covered by our government health insurance and done locally. Then I found out (thanks Cece) that there is a simple blood test for clots, called the d-Dimmer test.
Our next step was to get in to her regular doctor and get a referral for scanning and a blood test. The doctor told us that scanning for clots in the neck is not normal and may be difficult for the technicians therefore we should start with the blood test. My wife had the blood test last week and yesterday found out that the results a "slightly abnormal". She went today for a second blood test. If it is positive then we will have to try the ultrasound.
It is weird because I hope it is only restenosis so that there are no complications due to thrombosis. But I also think that if is is thrombosis and she was put on drugs that were successful at breaking up the clot, maybe her improvements would return without another angioplasty.
I wish this was all as simple as we first thought it was 18 months ago.
Rosegirl wrote:Everyone hopes for that "youtube moment" where they waltz out of the hospital right after their CCSVI treatment. Does it always work like that?
If you have had problems walking and have been treated, did you have to go through extensive physical therapy to regain function? Was it a slow rebuilding process?
Two days ago,I had a second venogram where five blockages (70-95%) were treated. I'm barely a little less stiff, so I'm still wall walking, preferably holding on bilaterally. Do I need to be patient and get some physical therapy ASAP?
drsclafani wrote:so, WHEN CLOT IS THE CONCERN, COMPRESSION ULTRASOUND not ZAMBONI ULTRASOUND IS INDICATED AND IS GENERALLY LOCALLY AVAILABLE AT A RADIOLOGY DEPARTMENT OR VASCULAR LABORATORY
What's "banding"? And did you see large improvements at first and then smaller ones later? Or just small ones eventually? Most of the IRs I've heard said that if you don't see big stuff within two days, you probably won't see anything.
I'm hoping now that more people have been treated, maybe there's a longer, slower improvement curve that some folks see.
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