Has anyone improved after treatment for thrombosis ?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Has anyone improved after treatment for thrombosis ?

Postby bruce123 » Thu Apr 21, 2011 12:47 pm

I am wondering about the following scenario.

Someone has angioplasty and has significant improvements and then a clot forms and the flow is impeded and the improvements disappear. They are then successfully treated with clot busting drugs. Has anyone then had a return of their improvements without having further angioplasty?

This seems like it should be possible but I have not heard of it.

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Postby Cece » Thu Apr 21, 2011 4:31 pm

Clot busting drugs are not the standard of care for these clots. Instead patients might be treated with Coumadin or another anticoagulant to prevent the clot from getting worse, and then wait to see if the clot clears.
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Postby mavis » Thu Apr 21, 2011 4:48 pm

Exactly. Clot busting drugs are dangerous, and used very sparingly, and usually under supervision. You are started on an injectible drug and Coumadin until you build up your INR to a level of 2.0-3.0 and then you wait to see if your body dissolves the clot. If it does, you get better as this means the obstruction or stenosis has cleared (I know this has happened to people before). But there are no guarantees, the clot can harden and become permanent.
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Postby JCB » Thu Apr 21, 2011 6:06 pm

I have been on that roller coaster. My left internal jugular does not want to stay clot free. I had a stent put in in Albany, it was one large clot at my 3 month check up. The Dr. in MN removed the clot and put me on anti-coagulation therapy. I improved symptom wise, then started to clot again. Have had this done a few times and started to get some relief from symptoms, then after about three weeks it starts to clot again. My Dr. is trying to figure out what to try next.

I am on coumadin, plavix and use lovenox pre and post procedure, but it hasn't stopped a thrombosis from occuring.

I still am more awake, alert, walk better, etc. since this whole thing started last Fall. My right side still has issues like foot drop, grip strength, etc.

I would like to see what the affect on my synptoms would be if my body could keep that vein open.
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