From what I understand they both have done follow-ups in the best way they can. I guess it depends on where the patient is from. They have both changed their procedure protocol to using IVUS, I think Dr. Cumming started using it all the time a month or so ago and Dr.Sclafani about the time Cece had her procedure done. These statements are from memory so I could be a little off on the details.
As a Canadian, I was a self pay so I really can't comment on the insurance issue. I used retirement savings, regular savings, and credit. My opinion is that it still isn't worth rushing into a decision.
My mobility is affected constantly and was getting worse when I had the procedure done so I had the now or never feeling. Wrong reason to make a decision. From everything I have read the cog fog and fatigue are almost always fixed and from my own experience my physical disabilities were being erased. I don't think I have been physically disabled long enough for the permanent damage to be severe enough.
I was diagnosed in 2005 but by that point I was already entering the secondary progressive zone. The disabilities were progressing without a relapse and they didn't remit at all. My belief is that if you aren't going from a cane to a wheelchair you are probably ok for a few more months at the least. The body is pretty amazing and you can be fully functional for a long time.
After having the procedure and feeling the most normal I have felt in years was like being reborn. But, when it started to go away, I really can't put that feeling into words. My belief is that CCSVI is such a real part of my disabilities and this makes me very sure of the procedure just not the technique that I had.
Do you take low dose aspirin? If not, maybe give it a try with ok from your GP. I had horrible fatigue, I was sleeping (napping) in the morning, afternoon, and in bed by 9 pm. I started taking the aspirin for other reasons and my fatigue has changed for the better.
Sorry for the long post, I guess my bottom line is don't rush if you are not totally comfortable, don't have it done yet. Can you talk to either Dr's? Where are you living?