carollevin wrote:Thanks for the recent responses. If anyone is willing to name who they think are the best IRs for CCSVI and why, I would love to know, as well as if anyone is willing to name doctors or medical centers we should avoid.
I've been looking for an IR with the lowest restenosis rate, and lowest thrombosis rate, but from what I can tell just from reading testimonials and sending emails to the doctors, it seems the rates are fairly similar among the most well known IR doctors' names.
I don't know if this field will evolve to a level where there is a more standardized method that can better ensure no restenosis or other complications. I don't really understand why some patients do so much better than others. Is it the doctor's skill or the person's level of CCSVI?
carollevin wrote:Come to think oif it, there is already a page on this site with testimonials in a formatted manner, but it doesn't seem there are any or many testimonials for this year (2011) and also the testimonials are not in chronological order and are kind of hard to read through. I could try creating a new topic page here asking people to post their experiences with CCSVI with their particular docs, including dates, improvements or not, complications if any, restenosis if any and when, name of doc and whether they would recommend, or whatever the individual would like to say basically. Do you think people would be interested in something like that?
As a patient in the U.S. trying to choose a doctor it is otherwise hard to find very many testimonials on any one particular IR.
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