Thanks for the recent responses. If anyone is willing to name who they think are the best IRs for CCSVI and why, I would love to know, as well as if anyone is willing to name doctors or medical centers we should avoid.
I've been looking for an IR with the lowest restenosis rate, and lowest thrombosis rate, but from what I can tell just from reading testimonials and sending emails to the doctors, it seems the rates are fairly similar among the most well known IR doctors' names.
I don't know if this field will evolve to a level where there is a more standardized method that can better ensure no restenosis or other complications. I don't really understand why some patients do so much better than others. Is it the doctor's skill or the person's level of CCSVI?
I believe Dr. Sclafani is the best IR because...
1) He is the most skilled and experienced IR:
Generally (30+ yrs including trauma experience) and in CCSVI specifically in that he has performed 150+ procedures using IVUS, and he collaborates with all AAC doctors around the country whose procedures number 450+, giving a total of 600+ procedures that he has guided and been responsible for.
2) He is the most adaptive IR:
A) He uses IVUS along with venography, a fantastic combination,
B) He works toward finding best practices and standardization,
C) He works to ensure his patients are not undertreated/overtreated,
D) His empathy for his patients is unsurpassed; he knows more about 'MS' than my own neurologist knows.
3) He is the most committed IR:
A) He maintains his thread, which we know is not always easy,
B) He runs the annual NYC CCSVI Symposium
which is July 15-17 this year,
C) He attends symposiums and conferences around the world,
D) He is extremely active in ISNVD
which he also helped conceive,
E) He postponed the good life of retirement so he could help pwCCSVI,
F) He took a cut in pay so he could help pwCCSVI.
I hope I've helped you see why I believe that Dr. Sclafani is the best IR.