This Is MS Multiple Sclerosis Community: Knowledge & Support
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Who are the best CCSVI docs doing the procedure in the U.S.? I am planning to have the procedure but can't seem to pick a doctor. I want one who is on the cutting edge and knows all the updates and recent improvements that have been made, proper testing, if testing is even needed, etc.
You might want to check out Dr. Sclafani who is in Brooklyn, and has a thread going here too, he is very much 'close' to the research, might be the closest but other people might know more than I on this. Make sure to read some, if not most of his thread.
carollevin, There is also an IR at UF that I have corresponded with who seems EXTREMELY caring but I believe he has only performed the Liberation Procedure on slightly more than 50 patients to date and I know you mentioned wanting someone with more experience.
I am in South Florida and am scheduled to go to Brooklyn to see Dr. Sclafani next month.
Yes CeCe. I only started talking to him right as I was approved with my insurance for Dr. Sclafani in May. I am really blown away with how much time he has taken to explain things to me in multiple emails back and forth, especially given the fact that he is already extremely busy and has nothing to gain financially because he is on staff at UF.
This is part of an e-mail I got back from Dr. Dake at Stanford talking about some doctors in Fl. that are treating patients.
Bulent Arslan) and the other trained here at Stanford (Brian Montague). Both have treated over 50 patients each with CCSVI and MS. I am supremely confident in their judgment and skills. I mention this because their location is so much closer to you than we are here .
I know Dr. Montague has an excellent reputation....but this issue that so many have of needing continual repeat treatment concerns me.
I have watched two of Dr. Joseph Hewitt's presentation --in the second one he most recently said that in the past year since they started doing valvioplasty and tearng the O-ring (or annnular ring) that restenosis rate is down to 10%.
I wonder why other IRs aren't following suit.
Yet I have not read any testimonials of Dr. Joseph Hewitt's patients to know how they feel about him--haven't been able to find any--so that has me scratching me head too.
Sure wish this would get more standardized and they would find a way to reduce restenosis.
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