got test results back

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

got test results back

Postby robbie » Tue Apr 26, 2011 7:00 am

Had a doppler done by Zamboni trained radiologist(so it said on the literature) and scored a 3/5 for CCSVI, qualifying factor for CCSVI is 2/5. Says i can have further testing in the form of an MRI and then it says that Dr. Zamboni's hypothesis is still highly controversial within the medical community and a decision to proceed with more invasive testing such as venography ought to take this into consideration.

There is a lot of other stuff as well like the results from the Supine study and the Upright study but over all the word mild is used so i guess thats enough for a 3 out of 5.

The test cost $250 CAN $265 US :lol: just wanted to find out if i had it. It's amazing to see CCSVI develop into such a buisness so fast.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Advertisement

Postby jimmylegs » Tue Apr 26, 2011 7:21 am

robbie!!!! hi :)
jimmylegs
Volunteer Moderator
 
Posts: 9025
Joined: Sat Mar 11, 2006 4:00 pm

Postby 1eye » Tue Apr 26, 2011 8:10 am

Which 2? Want to get even the least bit specific? Do you trust the claims on the literature? Is there any way of verifying this "Zamboni training"? I don't want to cause any cognitive dissonance, but since the watchword seems to be skepticism, if not paranoia, were there any technical details at all? Did they let you watch? They didn't let me watch. That seems to be part of the whole mystique of the Big Fancy Machine that allows everybody from car-mechanics to neurosurgeons to command a high salary and better working conditions. I think I put up with way too much BS. Dr. Bob showed me every millimeter, on the screen, in real time, because he wanted to.

Off Topic? I have decided the Canadian Public is politically Doomed. I know, it ain't over till it's over, but, I saw Red Green on TV last night and that reminded me that here in the hinterland survival of the fittest really does rule, so if we have to wait 5 more years to get rid of Harpo and 400 more people die every year we will be 2000 people more strong and free than we were before. That's democracy. Wonder if DUCTAPE helps stenosis?
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2920
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby robbie » Tue Apr 26, 2011 8:53 am

I got it done at the meat counter in Loblaws so i'm not sure if it has any creditability.
Your an interesting fella 1eye
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby CureIous » Tue Apr 26, 2011 8:24 pm

Man, wish my test only cost 250 haha. The MRV alone was thousands. Not my thousands, insurance thousands, granted in a university hospital not a clinic or whatever.

Sounds like a cheap test every MS'er should get, presuming they can get to a "Zamboni certified" sonographer. I have no doubt that we will eventually see many "Zamboni protocol" specialists and who's to know what exactly that means? Makes me think of food packaging, where what is stated on the package, doesn't quite mean exactly what we may think it means.

So what's your next step? Just curious about what it would show, or making a serious dive into the deep end of the pool?

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1210
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Postby robbie » Wed Apr 27, 2011 5:39 am

Can't afford to do anything now, see what happens down the road.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby 1eye » Wed Apr 27, 2011 6:50 am

Makes me think of food packaging, where what is stated on the package, doesn't quite mean exactly what we may think it means.

I hope the quip about Loblaws was as light-hearted as it sounded.

Indeed, while the "Zamboni" protocol can be done very quickly by a 'master' it is involved, and depends to a large extent on what is found. While my ~$400 examination in quebec was quick and cheap, I was very unsatisfied with it, and found out afterward that it a) found nothing (except that the examiner remarked my blood had the consistency of peanut butter) and b) depended on the deprecated Valsalva maneuver.

It is a fairly extensive protocol which you can research for yourself. One of the tricky parts is imaging the deep cerebral veins. Because the skull is solid, it carries sound waves differently. I used an ultrasonic system once that listened for weld defects in hardening metal. It also operated at very high frequency. Because of that, and the depth of the veins, the probe must be the special high frequency transponder, or so I believe.

Anyway, Robbie, now you can at least see you have a good reason to save up your dough and get the best treatment you can afford, with a gold-standard x-ray fluoroscope, from the best IR you can find.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2920
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby Cece » Wed Apr 27, 2011 7:55 am

Robbie, was the testing just to see if you have it, but you have no plans to go forward with treating at this time?
Cece
Family Elder
 
Posts: 9018
Joined: Mon Jan 04, 2010 4:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service