2nd Annual CCSVI Symposium in NYC July 15-17

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Would you be interested in attending a patient day without cost?

yes
38
81%
no
5
11%
maybe
4
9%
 
Total votes : 47

Postby bestadmom » Thu May 19, 2011 7:15 pm

Thanks for posting this Cece. I cross posted it on Facebook urging people to RSVP quickly. There's only room for 150.

There's also reasonable parking (by NY standards) within a few blocks of the hotel for those who can walk a little. The lots are on 40th street between 7th and 8th Ave and on top of Port Authority.
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Postby pklittle » Thu May 19, 2011 8:16 pm

Please sign me up. I will attend. (Is this thread where we sign up, other than the poll?)
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Postby Cece » Thu May 19, 2011 8:28 pm

registration is here, midway down the page, where it says "click to view":
http://ccsvisymposium.com/ms-patients

And the location has been revealed to be the Crowne Plaza Times Square Manhattan.
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Postby pklittle » Thu May 19, 2011 8:40 pm

To be clear, patients only attend on Friday, correct? The other days are physicians only?
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Postby bestadmom » Thu May 19, 2011 8:47 pm

Patient day is Friday only.
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Postby KikiT » Fri May 20, 2011 11:16 am

Just registered...can't wait to meet you all!!

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Postby Cece » Fri May 20, 2011 11:22 am

:)
9:30 a.m. - 10:00 a.m. “Coffee Time” (sign in and meet the speakers)
10:00 a.m. Welcome: Why We Are Here Today
10:15 a.m. What Is CCSVI and How Might It Relate to Multiple Sclerosis?
10:30 a.m. The Clinical Signs of CCSVI
10:45 a.m. How Physicians Screen Patients for CCSVI (Venography and MRI)
11:00 a.m. Break
11:15 a.m. The “Liberation Procedure” - Balloon Angioplasty of the Veins of the Central Nervous System
11:30 a.m. Recovery After the Liberation Procedure
11:45 a.m. Risks of the Liberation Procedure
12:00 noon Success Stories
12:15 p.m. Lunch
1:15 p.m. Patient Perspective: Essay on CCSVI
1:30 p.m. Screening Option: Traditional Ultrasound
1:45 p.m. Screening Option: Intravascular Ultrasound
2:00 p.m. Could Insertion of a Stent into a Vein Be an Answer for Some?
2:15 p.m. Prevention of Blood Clots
2:30 p.m. Break
2:45 p.m. Patient Roundtable Discussion
3:15 p.m. Questions and Answers
3:45 p.m. Summary
4:00 p.m. Movie Preview: When I Walk
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Postby drsclafani » Sun May 22, 2011 1:15 pm

bestadmom wrote:Patient day is Friday only.


another way one could say it is "only patients and caregivers on friday."

Doctors have their own days

we are looking into webcasting
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Postby burg » Sun May 22, 2011 1:48 pm

I hope to attend..
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Postby Thekla » Mon May 23, 2011 6:10 am

I wish I could attend. It sounds wonderful, but it is too expensive for us. However...a skype or other web deal would be the next best thing to being there in person.
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ccsvi

Postby blossom » Sun May 29, 2011 10:08 pm

bump bump
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Postby pklittle » Mon May 30, 2011 8:22 am

Will Dr. Zamboni make an appearance on patient's day?
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Postby ozarkcanoer » Mon May 30, 2011 8:44 am

I hope someone addresses the issue of occluded stents. I am in a pickle with an occluded stent high up in my left IJV. The other issue that must be addressed is patient follow-up. If I had been followed up sooner my left IJV stent may have been saved,

I sure wish I could be at "patient's day". But here I am stuck in the middle of the country. Good luck and thank you for all you have done, Dr S.

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Postby pklittle » Wed Jun 01, 2011 7:41 am

drsclafani wrote:
bestadmom wrote:Patient day is Friday only.


another way one could say it is "only patients and caregivers on friday."

Doctors have their own days

we are looking into webcasting


What I am really meaning to ask is... are Sat/Sun for Doctors only? or can patients sit in to listen?
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Postby drsclafani » Wed Jun 01, 2011 9:38 pm

pklittle wrote:
drsclafani wrote:
bestadmom wrote:Patient day is Friday only.


another way one could say it is "only patients and caregivers on friday."

Doctors have their own days

we are looking into webcasting


What I am really meaning to ask is... are Sat/Sun for Doctors only? or can patients sit in to listen?


many patients have asked for this opportunity.

I felt that it would be important that we maximize the opportunity for health care providers to enroll into our limited space.

if we do not meet our planned professional enrollment we will offer some seats to patients.

However because our budget needs maximum professional enrollment to limit the financial losses, any patient who is invited, will have to pay the professional fees.

tomorrow i will know more about how patients can get on a waiting list for this opportunity
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