2nd Annual CCSVI Symposium in NYC July 15-17

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Would you be interested in attending a patient day without cost?

yes
38
81%
no
5
11%
maybe
4
9%
 
Total votes : 47

Postby pklittle » Thu Jun 02, 2011 1:51 pm

Thanks Dr. S. btw, I forwarded the information/link about the symposium to my local IR, in hopes that he will attend. He told me at my last US appt. recently that he has very high regard for you. :D
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Postby KikiT » Mon Jun 13, 2011 6:55 am

Does anyone have a list of patients attending?? Not real names, our TIMS names would be more recognizable? Maybe we should wear 2 name badges.
I just booked a room.for Thursday night....very$$$ think of it as my LIBERATION VACATION CELEBRATION!
Anyone going from Thursday??

Kiki
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Postby CenterOfGravity » Mon Jun 13, 2011 12:39 pm

Oh what unfortunate timing, I am flying to NJ/NY that weekend. I don't think I can change all my plans to leave 2 days earlier. I look forward to hearing about it though!
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Postby LauraV » Mon Jun 20, 2011 6:54 pm

Kiki,
Love the idea of the name tags. I'm fortunate that I live close by so I'll just drive in Friday. Hope to meet you and our other TIMS members then.
Laura
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Postby KikiT » Tue Jun 21, 2011 9:28 am

Yes Laura
I live close enough also, LI. I can't get going in the mornings so this was a good excuse to see a play Thursday night and just wake up and scoot downstairs. I should even have time to comb my hair!LOL

Kiki
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Postby pklittle » Wed Jun 22, 2011 4:23 pm

How can one remove their name from the list? I previously registered for the patients day.
Ironically, I don't feel well enough to go (due to MS!!). That plus the fact that the hotel rate is very high as I didn't get one of the rooms with the lower rate.
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Postby Cece » Wed Jun 22, 2011 4:48 pm

for what it's worth, I used Hotwire to book my hotel. I'm up the street but not far and definitely cheaper.

Hope you feel better, pklittle.
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Postby Cece » Wed Jun 22, 2011 4:59 pm

Image
we need nametags with the TIMS logo on them! :)
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Postby Icechick » Thu Jun 23, 2011 9:55 am

I will be there and will have a table for the CCSVI Alliance. Be sure to stop by and say hi!

Christine R.
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Postby dlb » Thu Jun 23, 2011 12:17 pm

pklittle wrote:How can one remove their name from the list? I previously registered for the patients day.
Ironically, I don't feel well enough to go (due to MS!!). That plus the fact that the hotel rate is very high as I didn't get one of the rooms with the lower rate.


Sorry you aren't feeling up to the trip pklittle....

How does one know if they have made the attendance list? I filled the form & asked for a confirmation.... Then filled the form a second time for my husband who was able to get to NY in time as well. Again I asked for a confirmation but have rec'd no notice that we are able to attend. Have to be in NY until the 23rd, so booking hotels is dependent on this information.... Can anyone help?
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Postby drsclafani » Thu Jun 23, 2011 10:05 pm

dlb wrote:
pklittle wrote:How can one remove their name from the list? I previously registered for the patients day.
Ironically, I don't feel well enough to go (due to MS!!). That plus the fact that the hotel rate is very high as I didn't get one of the rooms with the lower rate.


Sorry you aren't feeling up to the trip pklittle....

How does one know if they have made the attendance list? I filled the form & asked for a confirmation.... Then filled the form a second time for my husband who was able to get to NY in time as well. Again I asked for a confirmation but have rec'd no notice that we are able to attend. Have to be in NY until the 23rd, so booking hotels is dependent on this information.... Can anyone help?


The room is underregistered and there will be no problem for those interested in attending.
i will get further information

DrS
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Postby bestadmom » Sat Jun 25, 2011 8:49 am

If you haven't done so already, don't forget to register for Dr. Sclafani's FREE full day patient symposium. Here's the link - http://ccsvisymposium.com/ Click on the patient link on the right.

Please CROSSPOST!!!
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Postby Cece » Sat Jun 25, 2011 10:18 am

There were some confirmations sent out on June 20th. (I got two, but they both landed in my spam folder so check there....)
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Postby bestadmom » Sat Jun 25, 2011 10:50 am

I registered twice, called to confirm and they said do it again, and got nothing. I bet I'm not on the list!
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Postby Cece » Sat Jun 25, 2011 11:35 am

huh! Here's what the confirmation said:
RE: MS Education Day RSVP

Thank you for your RSVP.

Thanks!
Blanca Quiñones
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