2nd Annual CCSVI Symposium in NYC July 15-17

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Would you be interested in attending a patient day without cost?

yes
38
81%
no
5
11%
maybe
4
9%
 
Total votes : 47

Postby pklittle » Sat Jun 25, 2011 1:37 pm

Cece wrote:huh! Here's what the confirmation said:
RE: MS Education Day RSVP

Thank you for your RSVP.

Thanks!
Blanca Quiñones
Registration Coordinator
Complete Conference Management


Thanks for pointing this out. Mine was in my spam folder too.
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Postby bestadmom » Sat Jun 25, 2011 7:49 pm

I don't have a spam folder :-(
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Re: RSVPs

Postby NHE » Sat Jun 25, 2011 9:56 pm

bestadmom wrote:I don't have a spam folder :-(


Some ISPs filter spam on their own servers before you even download your email. For example, if I use my ISP's webmail option, I can access a spam folder that they filter for me that typically blocks about 150 junk messages a day. I never see these messages when I use my regular email program on my own machine.


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Postby bestadmom » Sat Jun 25, 2011 10:10 pm

Thx nhe. I have my server settings permissive because some of my important mail was getting put into spam. I need to check the trash on June 20th but I have a feeling my registration didn't process. It didn't go thru once and the registration manager said to do it again.

Anyway, if anyone registered let me know your name by pm. I'm cross checking the list for dr. S.
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Postby dlb » Sun Jun 26, 2011 10:18 am

Cece wrote:There were some confirmations sent out on June 20th. (I got two, but they both landed in my spam folder so check there....)


You are absolutely correct.... June 20th, 2 confirmations (myself & hubby) landed in the spam folder.
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Postby drsclafani » Mon Jun 27, 2011 1:31 pm

From Complete Conference Management (CCM)
Blanca Quiñones\
Registration Coordinator
Complete Conference Management

Good Morning,

What I can do is resend them the confirmations again. As I have told Amy to please let any of the patients knows if they call asking for their RSVP’s to please double check their spam/junk mail as it may have a tendency to go there.

Again, please have the patients look into their spam/junk mail for their confirmations and that I am the person sending them the email.



Thanks!
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Postby pklittle » Wed Jun 29, 2011 7:39 pm

drsclafani wrote:
The room is underregistered and there will be no problem for those interested in attending.
i will get further information

DrS


Dr S,
I got the same story, that there are no rooms available for the discounted rate. Were you able to get further information?
thx
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Postby bestadmom » Wed Jun 29, 2011 7:57 pm

I believe the rate expired last week according to the symposium site.

I'm local so I don't need a room but my industry has several trade shows near the symposium the same weekend. There are discounted room rates. If you need details pm me.
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Postby drsclafani » Wed Jun 29, 2011 10:51 pm

pklittle wrote:
drsclafani wrote:
The room is underregistered and there will be no problem for those interested in attending.
i will get further information

DrS


Dr S,
I got the same story, that there are no rooms available for the discounted rate. Were you able to get further information?
thx


we were already quite in the red and corporate could not guarantee to the hotel more rooms.

there are many hotels in the area, that is not the only one
my suggestion is to go on line and search for additional rooms
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Postby drsclafani » Wed Jun 29, 2011 10:55 pm

drsclafani wrote:
The room is underregistered and there will be no problem for those interested in attending.
i will get further information

DrS



registration for both physician and patient days has improved but there are still lots of availability for this conference
Hopefully we will grow the attendance for the conference in the next two weeks

DrS
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Postby bestadmom » Thu Jun 30, 2011 5:17 am

Dr. S,

When I tracked the registrartion for the Tampa symposoim in March, we went from about 50 registrations to 110 in the last week to 10 days. There was a story in the newspaper three days prior to the event, and 175 people showed up.

If we can get a story placed with a patient profile, the interest will compound. It's important to reach new people.
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Postby pklittle » Thu Jun 30, 2011 12:36 pm

drsclafani wrote:
pklittle wrote:
drsclafani wrote:
The room is underregistered and there will be no problem for those interested in attending.
i will get further information

DrS


Dr S,
I got the same story, that there are no rooms available for the discounted rate. Were you able to get further information?
thx


we were already quite in the red and corporate could not guarantee to the hotel more rooms.

there are many hotels in the area, that is not the only one
my suggestion is to go on line and search for additional rooms


I know there are tons of hotels in the area. I will be honest though. With MS symptoms, the heat, the difficulty walking, the lack of energy... it is always necessary that I optimize everything, take as few steps as needed, have a place to lay down and rest if needed. It is hard for anyone to understand that doesn't have MS difficulties. It is a big difference to me whether I can stay in the same hotel as the conference.

Sorry to belabor this point, I am just trying to explain where I am at.

I went ahead and reserved a room at the high rate.
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CCSVI symposium

Postby LauraV » Thu Jun 30, 2011 4:44 pm

Do we have to present our RSVPs to get into the Patients' Day?
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Postby pklittle » Thu Jun 30, 2011 8:53 pm

Do we need to register our spouse's separately?
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Postby bestadmom » Thu Jun 30, 2011 9:10 pm

I believe spouses need to be registered because it will help get an accurate count given the room size.
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