2nd Annual CCSVI Symposium in NYC July 15-17

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Would you be interested in attending a patient day without cost?

yes
38
81%
no
5
11%
maybe
4
9%
 
Total votes : 47

NYC Restaurant Week

Postby KikiT » Sat Jul 09, 2011 8:16 am

It just happens to be Restaurant Week in NY the week of conference.
FYI...Google NYC Restaurant Week . You need to make reservations to make sure you get in.



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Re: NYC Restaurant Week

Postby pklittle » Sat Jul 09, 2011 9:10 am

KikiT wrote:It just happens to be Restaurant Week in NY the week of conference.
FYI...Google NYC Restaurant Week . You need to make reservations to make sure you get in.



Kiki


thanks for the tip!
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Re: NYC Restaurant Week

Postby drsclafani » Sun Jul 10, 2011 10:19 am

pklittle wrote:
KikiT wrote:It just happens to be Restaurant Week in NY the week of conference.
FYI...Google NYC Restaurant Week . You need to make reservations to make sure you get in.



Kiki


thanks for the tip!


Here are some of my tips

EXPENSIVE
Adour french
Scalini Fideli italy
River Cafe American
Four Seasons American
Eleven Madison
Le Bernardin french seafood


FUN
Jazz Standard
Hurricaine Club
Bemelmans a piano bar for the upper crust of ny
Eatily Mario Batali's italian food market
Ellen's Stardust Diner (near hotel) singing waiters serve diner food

MY FAVORITES WITHIN 10 BLOCKS OF MEETING LOCATION
Blue Fin (at hotel?) seafood
Juniors Brooklyn deli with great cheese cake and pastrami standwiches
Le Marais kosher steakhouse
Lattanzi Italian Jewish cooking
Oceana seafood
Bar Americain Bobby Flay American
Marea Italian seafood
Modern a Danny Myers restaurant at Museum of Modern Art
Pampano Mexican seafood
Aquavit Scandanavian
Piano Due italian , the murals in the bar downstairs are beautiful

MY FAVORITES NOT IN VICINITY OF MEETING
I Trulli italian
Thallasa Greek seafood
Ilili middle eastern
Primehouse steakhouse aged bone in aged filet mignon and that Caesar Salad!
Tribeca Grill American
Perbacco italian small plates in east village
Rosa Mexicano West, accross the street from Lincoln Center
Locanda Verde Italian
Avra greek seafood
molyvos greek
veniero's east village Italian pastries
For Chinese: pick one in chinatown
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Postby pklittle » Sun Jul 10, 2011 3:08 pm

Thanks for all the restaurant info Dr! NYC has the best food.

I can vouch for Juniors. I have been there several times. Yum. Cheesecake gets an A++++.
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patient's day coffee

Postby msscooter » Mon Jul 11, 2011 5:52 pm

Hi Dr S. can you clarify, please is the morning coffee from 8:30 or from 9:30 to 10? I think you said the former and the schedule says the latter on the website. http://ccsvisymposium.com/ms-patients

Also, looks like the Annette Funicello food service for that break has been funded (was just informed!). Sure hope the start time is 8:30 so we have time to get snacks and chat with the doctors!!!! but please clarify and notify the webmaster for us.
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Re: patient's day coffee

Postby drsclafani » Mon Jul 11, 2011 5:58 pm

msscooter wrote:Hi Dr S. can you clarify, please is the morning coffee from 8:30 or from 9:30 to 10? I think you said the former and the schedule says the latter on the website. http://ccsvisymposium.com/ms-patients

Also, looks like the Annette Funicello food service for that break has been funded (was just informed!). Sure hope the start time is 8:30 so we have time to get snacks and chat with the doctors!!!! but please clarify and notify the webmaster for us.


coffee could be from 830-945.

i will be there at 830!


this is all a work in progress and i am better at lecturing that planning lectures, better at caring for patients than caring about coffee breaks, so bear with me during my evoluation.

I remember last year putting that meeting on on six weeks notice. getting people to travel around the world to participate on short notice and flying by the seat of my pants.

this year we have an organizing committee, a three day conference instead of one day, and a bigger more ambitious program.

its at least three times as hard as the one day

but we will all survive wont we.
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Postby Cece » Mon Jul 11, 2011 6:30 pm

I hope you know how much your hard work is appreciated.

I sent an email in through the "Contact us" page, letting CCM know that the time was wrong and needed fixing.
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Postby HappyPoet » Mon Jul 11, 2011 7:04 pm

Is anyone interested in a TIMS Happy Hour at the Crowne Plaza hotel bar/restaurant after the Patient Education Day ends?

I'm already meeting two friends afterward, but the more the merrier, yes?

:)

Edit: Sorry if this idea has already been proposed--if so, can someone please point me to the right page or thread? TY
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Postby msscooter » Mon Jul 11, 2011 7:27 pm

Dr S.

it takes a village. we are all there for you, and so very appreciative of the generosity of AAC in making the patient's day free to attend. Hope we can all meet at 8:30. and happy hour after too!

I have just heard confirmation that Annette Funicello's Research fund for Neurological Diseases will be sponsoring a fresh fruit, green tea buffet to accompany the coffee as a way to demonstrate their interest in supporting research into CCSVI and thanking you for putting on this program for us.

http://www.businesswire.com/news/home/2 ... cation-Day
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Postby MrSuccess » Mon Jul 11, 2011 8:30 pm

now .....you tell me there will be drinks involved .... :twisted:

thanks a lot Pam ....... :wink:




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Postby bestadmom » Mon Jul 11, 2011 8:46 pm

Come on down, MrSuccess. The more, the merrier.
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Postby pklittle » Tue Jul 12, 2011 9:53 am

HappyPoet wrote:Is anyone interested in a TIMS Happy Hour at the Crowne Plaza hotel bar/restaurant after the Patient Education Day ends?

I'm already meeting two friends afterward, but the more the merrier, yes?

:)

Edit: Sorry if this idea has already been proposed--if so, can someone please point me to the right page or thread? TY


My hubby and I are interested happypoet. :)
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Postby HappyPoet » Tue Jul 12, 2011 11:02 am

MrSuccess wrote:thanks a lot Pam ....... ;)

I agree with bestadmom, come on down.

pklittle wrote:My hubby and I are interested happypoet. :)

Terrific! Hopefully, lots of us will want to meet. :)

Does anyone have any ideas on how we could make this happen? Perhaps an announcement at the beginning and end of Patient Day that tells everyone the name of the bar/restaurant where the folks from TIMS will be meeting? Cece thought of making TIMS name tags, but I don't know if she was able to follow through with the idea.
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Postby bestadmom » Tue Jul 12, 2011 11:09 am

Broadway 49 is the hotel bar. Basserie is the restaurant but it has fixed booths. The bar looks like it's the type of place we should go.

It will be quite the scene when upwards of 100 pwMS and their caregivers arrive. There are many more facebookers coming on than tims-ers.
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Postby dlb » Tue Jul 12, 2011 11:11 am

Hi Pam,
I was hoping to meet you at this symposium. Hubby & I are arriving on the 14th from 2 different directions, to take in the patient day. My procedure with Dr. Sclafani is on the 18th. Doug (hubby) works in Africa, so I'm hoping he has time for a haircut in Frankfurt on his way - otherwise.... look for the wooliest looking Canadian there... LOL Happy hour sounds like a great idea!
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