IJV compressed by vertebra

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

IJV compressed by vertebra

Postby LadyGazelle » Thu Apr 28, 2011 9:53 am

How can a vertebra compress the internal juggular vein?

I had the procedure and that is what Dr. Siskin suspected, and said it could not be opened with a balloon or a stent. He would not order an MRV; "not necessary." How does he know for sure, just because they find it a lot at the upper portion of the IJV?

I am seeing a vascular surgeon on Monday and would like to know what can be done to find out what is happening there - with undeniable proof? A month after my procedure, I saw that my left hand was purpley-reddish for the first time. I think it could be from my left internal jugular vein, but what do I know? Primary doc and neurologist won't order a MRV - but I am only assuming that is the test I need.

What could be done about it anyway, if it is? The "Upright Doc" here suggested NUCCA chiropractic, which I had for several weeks. But after ultrasound, the left IJV is still much smaller than the right. I told Dr. Siskin, and he said they call the one vein that's larger than the other, the "dominate vein". NUCCA didn't help my IJV... however other problems I didn't know I had were fixed. I gained 2 inches in height and one leg was 3/4-inch shorter than the other... which doesn't equate, but my head was always tilted to the side - but is great now. Thanks to the Upright Doc. :D

Also - I have double vision (since 2008) and was wondering if that is affected by the cerebral veins; i.e. sigmoid sinus. I would like to get them imaged, and was hoping the MRV would show those. Am I correct? And then, who treats "cerebral veins" with venoplasty?

Any advice would be appreciated before Monday's appointment.

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Postby blossom » Thu Apr 28, 2011 7:28 pm

would the vertebrae putting pressure on the vein maybe fall into the catagory that dr. noda treats called ctos? that involves surgery. i could be wrong but you might want to check it out. then what to do?? there are tos doc's around and maybe they might have some idea.

why does it all have to be so hard????? hope you get the answer, i'm sure there are more than you with this going on. keep us posted and good hunting.
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Postby Cece » Thu Apr 28, 2011 8:08 pm

Did you send me the report, back when you had the procedure, or did I read it on your blog? I remember thinking that the comment have been about vertebrals, not vertebrae. Vertebrals are the veins that drain the brain that are too small for ballooning. Other patients have had blocked vertebrals.

Cerebral veins would need a cerebral MRV, I believe, and a neurointerventional radiologist to interpret the MRV and, if there is something a neurointerventional radiologist would treat, to treat it. I've heard only two stories of CCSVI patients getting something done about an issue in their dural sinuses; one was cheerleader's husband and the other was, I believe, over on the CCSVI in MS facebook page. Getting someone to do anything about a cerebral blockage is many times harder than getting a CCSVI IR to fix the jugulars.

All the best to you.
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