Magoo/Rhonda needed a second treatment!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

under should blade - changed sensation

Postby hwebb » Wed May 04, 2011 2:01 pm

Interesting to hear of the preesure/pain under your left shoulder blade Rhonda. I've been getting a new pressure here too - which is concerning me. I've learnt to not ignore feelings of pressure....they're indicative that something somewhere is blocked. I hope my azygos hasn't reblocked (was treated ~ 15 months ago, and looked fine during a subsequent checkup).
H.
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Postby leetz » Thu May 05, 2011 12:34 pm

Hang in there...may God bestow his blessing upon you and your's!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby pklittle » Thu May 05, 2011 7:55 pm

Thinking of you Rhonda and wishing you well in your recovery.
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Postby pklittle » Mon Jun 06, 2011 5:58 am

bump
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Postby 1eye » Mon Jun 06, 2011 11:07 am

I'm thinking of you too and I hope you have the pain and other stuff in control. I'm still on the stubbornness regime which gets me out of this chair once in a while. The clot, if that is what it is, likes my hand vibrating gizmo. I leave it on for some 15 minutes sometimes.

If you have a chance, let us know how you've been. Some of us are worriers, you know... :) :)
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby cheerleader » Mon Jun 06, 2011 11:55 am

hey all--
I'm buddies with Rhonda on FB and will shoot her a note to let her know you all are thinking of her. She's had a recent death in her family, and has been very busy with all of that...but her pain issues have resolved, and she's on the path to healing. I'm sure she'll check back in once she's home and able.

From FB
CCSVI Update: Today is 4 weeks from my last treatment and I am happy to report that I am doing great! The pain has diminished greatly and I feel the healing process really setting in. I've gained the improvements I had hoped for :) Thanks for everyones care and concern. I only hope the research comes quickly, so that people with MS can begin to heal. Look out summer, here I come!!

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby magoo » Thu Jul 07, 2011 11:08 am

It has now been two months since my last procedure. Thanks to Joan for posting a quick update for me a month ago :D
I am happy to report my headaches, heat intolerance, numbness, and fatigue are GONE! I am sleeping well and I am out there enjoying life.
The only complaint is the pain under my left shoulder blade which has continued to be incredibly painful. It is also much worse in the morning when I wake.
Before I had my first procedure, the mornings were the worst for me. It took at least an hour to straighten up, move my legs properly, wait for the pain meds to kick in, and I never felt like I'd slept. I believe mornings are bad because lying flat with these blockages creates very slow bloodfow and awful reflux. So, my thoughts regarding this pain under my left shoulder blade, point me to thinking there is a blockage somewhere. I am not going to jump back on the table just yet to find out though. I feel really good, so I will just live with the new pain and continue to look for answers. I would really appreciate a response from anyone who has a similar pain.
I have a new internist who has studied my giant file and has been doing lots of testing. I found out I have Hashimoto's Thyroiditis. He's incredibly knowledgeable about the human body and I could kick myself for sticking with my old doctor for so long! I just wanted to mention this because it is important to to insist on good medical care. Don't stick with a doctor who is not helpful or supportive. My old doctor made me feel like a giant pain in the butt and I hated going there. I am so happy I decided to find a more supportive and caring doctor to handle my healthcare needs. If you don't feel comfortable with your doc...move on!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby magoo » Thu Jul 07, 2011 4:46 pm

I forgot to add that I had a brain MRI and it showed NO new activity!!!!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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