This Is MS Multiple Sclerosis Community: Knowledge & Support

IRs are the guys in charge of the treatment itself. I think this puts them first and foremost in terms of what we need and what's best for pwMS. For figuring out all the cascade of effects and what's been going on in our veins and brains, that takes the team of specialists across disciplines. (It has been something to see the establishment of ISNVD and all that was accomplished at their first conference.) That will take time. I am very interested in all those effects and I don't yet understand things like endothelin-1 as much as I'd like to. In the meantime while there are patients going forward with treatment, my attention is on the IRs who are providing that treatment and working hard to make it safer and more durable and more successful.

I agree. As we sometimes experience miraculous recoveries after operations and sudden deteriorations when veins collapse, I think there is much more behind than what we see today. In either case, it would be important to know what is going on to avoid major damages and to also understand what causes the improvement. This is I think beyond IRs. As long as we do not know what are the other connections, we would need specialists from different fields.

In a different situation, my understanding is that if someone has a heart problem, he goes to a cardiologist and he might send his patient to the IR to do the plumbig job. In our case it should be something similar, but instead of cardiologist we might need someone else.

In a different situation, my understanding is that if someone has a heart problem, he goes to a cardiologist and he might send his patient to the IR to do the plumbing job. In our case it should be something similar, but instead of cardiologist we might need someone else.
Well, you send out your plumbing jobs, do you?

Interesting. I had no idea there was such a hierarchy among MDs. So in effect IRs only 'borrow' patients until they give them back to the Main Doc? Just for subcontracting stuff, right? And is there an accepted industry scale for this subcontract work?

That's the real problem, isn't it? If somebody can suddenly treat something that wasn't treatable before, you have a situation of uncontrolled market freedom and a whole lot of people who, until now, didn't make many headlines, as much as most surgeons, acting like capitalists. They are trying to actually make money off of something doctors often say they do without being able to deliver: relieving suffering. Because they can often deliver, the money is flowing. Some people don't like seeing that happen.

So let's call the plumber, before this thing overflows...

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

This thread was intended to start a discussion on the potential future effectiveness of angioplasty. Since, we did not have enough info on the angioplasty of IJV and azygos I posted an article on angioplasty of arteries for discussion.

You have to accept the fact that many of us got into a worse condition after angioplaty than we were before so I think our opinion should be taken into account as well if we try to find an answer to the effectiveness of angioplasty.

I thank Cat's comments, because I see her comments were very thoughtful.

Indeed! In moving from his hospital position to American Access Care, Dr. Sclafani has stated that he has taken a notable reduction in his salary. He has done this since he believes that he can help people with MS. I suspect that there are very few people in this world that would follow suit.


NHE

Hi griff. I am not sure you had a chance to see my question on your other thread, but I had a sincere question. Where in Europe do you live? What is your native language? Thank you.

I live in Croatia. So, I can not speak Italian and also forgive me that my English is not perfect either.

It is interesting that no IR doing CCSVI operations have refuted this data. So, I am still curious whether we face similar prospects with angioplasty of IJVs and azygos....

Different patient population, different disease, different type of blood vessels.

Of course, if you are lying in a very very very crowded hospital ward with nothing but a johnny shirt on and the nurses think it's hilarious to watch you spill the urine bottle on yourself because something down there isn't quite working and they have to poke you about 17 times to get a line in for the tranquilizer because they have to rip off those electrodes and you are going down for angio in an hour, and after three blood tests and an echo they told you you need it because you have had a heart attack, you are bound to remember what you read on TiMS, and heard Montel say, and read in the waiting room, and by the way didn't Colin Rose agree it was a silly thing to let them do? Sure you'll just tell them all to stuff it, you read it on the Internet, so call me a cab.

I have three stents in my chest and if anybody tells me one more time that there is no documented proof that I will not die anyway, I cannot be responsible for the mess that they will make on the floor when my chest explodes in that person's general direction.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience