country singer Clay Walker has CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

country singer Clay Walker has CCSVI

Postby Cece » Mon May 02, 2011 8:04 am

www.facebook.com/notes/ccsvi-in-multipl ... 3231882211

Clay Walker has had an MRV done and had "grossly obstructed veins" like all the rest of us.
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Postby cheerleader » Mon May 02, 2011 9:13 am

For those not on Facebook, a brief summation:

A member of our page attended the Erase MS open forum and reported back.

Clay Walker was a guest panelist at the Erase MS open forum held in southern California this weekend. The lead speakers were neurologists Dr. Stephen Hauser (editor of the Annals of Neurology) and Dr. Howard Weiner. The neuros hoped to nip CCSVI discussion in the bud by opening their statements and saying it was all placebo and there is nothing to note in CCSVI research.

Renowned country music singer and recording artist, Clay Walker, spoke about his recent testing for venous obstruction and his own jugular vein malformations, much to the chagrin of the neurologists. He asked Dr. Hauser if he intended to test for venous malformations, since many pwMS are showing these same problems...Dr. Hauser said no.

As more and more pwMS come forward with questions about their own vascular problems, there is more interest in the diagnosis and treatment of CCSVI.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby WeWillBeatMS » Mon May 02, 2011 11:24 am

That's so great. I'm not even a fan of country music yet I want to go buy his album.

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Postby jacksonsmommy » Mon May 02, 2011 1:43 pm

The question remains - he is going to get treated??
CCSVI procedure May 31, 2010
RRMS - Official diagnosis January 2009
MS symptoms since at least 2000 (EBV trigger 98?)
75 - 80% Resistant Stenosis in Left Jugular - Stent
Tokuda Hospital, Bulgaria (Dr. Petrov)
Immediate and substantial results!!
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Postby PCakes » Mon May 02, 2011 2:13 pm

not a bad spokesman :)
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Postby scorpion » Mon May 02, 2011 8:12 pm

cheerleader wrote:For those not on Facebook, a brief summation:

A member of our page attended the Erase MS open forum and reported back.

Clay Walker was a guest panelist at the Erase MS open forum held in southern California this weekend. The lead speakers were neurologists Dr. Stephen Hauser (editor of the Annals of Neurology) and Dr. Howard Weiner. The neuros hoped to nip CCSVI discussion in the bud by opening their statements and saying it was all placebo and there is nothing to note in CCSVI research.

Renowned country music singer and recording artist, Clay Walker, spoke about his recent testing for venous obstruction and his own jugular vein malformations, much to the chagrin of the neurologists. He asked Dr. Hauser if he intended to test for venous malformations, since many pwMS are showing these same problems...Dr. Hauser said no.

As more and more pwMS come forward with questions about their own vascular problems, there is more interest in the diagnosis and treatment of CCSVI.
cheer



Research results preferred.
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Postby Cece » Mon May 02, 2011 8:17 pm

pcakes mmmhmmm quite acceptable!
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Postby cheerleader » Mon May 02, 2011 9:20 pm

It would be wonderful if Clay Walker could be part of the research, scorpion...but sadly, it has fallen upon pwMS to find out if they have venous malformations on their own. This is because the doctors that pwMS count on, neurologists, are not considering testing for venous malformations as important. Clay asked Dr. Hauser point blank if he were testing for venous malformations, and Dr. Hauser told him no. Clay was tested in Houston and found to have 100% occlusion of one IJV and 80% occlusion of the other. This would qualify him for angioplasty under most insurance programs. As Dr. Dake told Jeff, someone who presented exactly the same way, "This is not good for your brain." Clay is consulting with doctors as to how best treat his very severe venous stenosis. He credits diet and exercise with his lack of disability.

As more and more pwMS are tested and come forward with their results, the research will continue.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby frodo » Tue May 03, 2011 12:15 am

cheerleader wrote:This is because the doctors that pwMS count on, neurologists, are not considering testing for venous malformations as important.


I would say that this is a bad diagnosis, since McDonald criteria imposes to discard any explanation for the lesions before giving a MS diagnosis. Maybe somebody with resources could start a lawsuit against such a poorly done diagnosis.
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