Treatment for CCSVI in Bruges, Belgium

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Treatment for CCSVI in Bruges, Belgium

Postby pauly » Wed May 04, 2011 6:00 am

Hello all,

Last week I have had my treatment in Bruges. With in 2 weeks I could come for the apointment. The docter who performed my treatment was docter Jan de Letter, he was verry friendly and he was taking all the time for me after the treatment. Within two days I had the scan, and the treatment.

I found it a verry nice/good experience and really I already have some improvements. The spasmen in my legs are gone and also my energie level is better. Friday I am going to my therapist for a plan for action, I am curious what he will say.

Are there any people who also had the treatment done in Belgium?
What are your experience?

greetings Paul
User avatar
pauly
Newbie
 
Posts: 5
Joined: Mon May 02, 2011 2:00 pm

Advertisement

Postby joge » Wed May 04, 2011 6:54 am

Of course!

Done by Roel Beelen MD. in Aalst. Lots of people went there. People from Belgium, but also from abroad. Canada, UK.
I'm ready, I'm ready !
User avatar
joge
Family Elder
 
Posts: 109
Joined: Mon May 24, 2010 2:00 pm

Postby pauly » Thu May 05, 2011 3:23 am

yes, that's true Joge.
I had to make my choice between him and Jan de Letter MD.
In Bruges there was no waitinglist.

Paul
User avatar
pauly
Newbie
 
Posts: 5
Joined: Mon May 02, 2011 2:00 pm

Re: Treatment for CCSVI in Bruges, Belgium

Postby daffy84 » Wed Nov 09, 2011 1:13 am

Hello guys, next week I'll have to go to Bruges to do the surgery. I would like to know if it is a serious clinical, because they asked me all the money in advance. (Private Scan)
daffy84
Newbie
 
Posts: 1
Joined: Wed Nov 09, 2011 1:08 am

IVUS in Bruges, Belgium ?????

Postby MarkW » Thu Nov 10, 2011 4:44 am

Thanks for posting the info, Paul. I have a simple question - Does this clinic use IntraVascular UltraSound (IVUS) in the diagnosis ???
The reason for using both tools is that Catheter Venograms may miss some instances of stenosis, which are detected with IVUS. Also sizing of balloons to treat vein valve problems is usually more accurate with IVUS. I recommend that catheter venography and IVUS are used. As we have to pay for this I want pwMS to get a full diagnosis. See Gold Standard thread and IVUS thread for more info.
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
User avatar
MarkW
Family Elder
 
Posts: 1151
Joined: Thu Oct 19, 2006 2:00 pm
Location: Oxfordshire, England

Re: Treatment for CCSVI in Bruges, Belgium

Postby Cece » Thu Nov 10, 2011 6:08 am

I agree with Mark about IVUS being fundamental in the procedure.

Here's a letter from Dr. Jan de Letter on some of his techniques (yes to high pressure balloons, no to cutting balloons).
www.ccsvi-online.com/news/studies-and-p ... ment-ccsvi
All the best to daffy with the procedure!! Pauly, congrats on the improvements!
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Re: Treatment for CCSVI in Bruges, Belgium

Postby Robnl » Thu Nov 10, 2011 11:36 pm

Last week i spoke to someone who was interested in the IVUS approach, he told me that there is no IVUS in Brugge and sadly there is no interest.

I know some people of the organization, maybe i give them a call and try to convince them of the IVUS approach (i had treatment with IVUS at OLV in Aalst)
User avatar
Robnl
Family Elder
 
Posts: 452
Joined: Sun Nov 08, 2009 3:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: sbr487


Contact us | Terms of Service