This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 18, 2013 7:14 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 12 posts ] 
Author Message
 Post subject: My turn!
PostPosted: Thu May 05, 2011 3:07 pm 
Offline
Family Member
User avatar

Joined: Mon Mar 08, 2010 4:00 pm
Posts: 58
Location: Gatineau, QC, CA
Last friday it was my turn, with Dr Sclafani.
I had blocages in Left Jugular, Azygos(18mm big!) and Illiac,

The day after, the fatigue was gone, and I already had less spasticity in my legs.
since I didnt have any headaches too.

Now I got a flu, so every muscle of my body is hurting, but even with that I feel better than before

Thanks to Dr Sclafani and his team at AAC.


Top
 Profile  
 
 Post subject:
PostPosted: Thu May 05, 2011 4:21 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
Keep healing, Mathd!!


Top
 Profile  
 
 Post subject:
PostPosted: Thu May 05, 2011 5:04 pm 
Offline
Family Elder
User avatar

Joined: Mon Apr 18, 2005 3:00 pm
Posts: 440
I'm so excited for you! Congrats on finding RELIEF from symptoms already! But I'm so sorry you now have the flu. I hope you have a good support system. Make sure you rest, stay well hydrated, and take care of yourself! :-) Are you in New York?


Top
 Profile  
 
PostPosted: Thu May 05, 2011 5:37 pm 
Offline
Family Elder
User avatar

Joined: Tue Nov 18, 2008 4:00 pm
Posts: 120
Just a a curiosity, maybe someone could do a poll to see how many people had the treatment and did/did not get sick soon afterward.


Top
 Profile  
 
 Post subject:
PostPosted: Thu May 05, 2011 5:38 pm 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
I'm happy that things are working out so well for you, MathD !!! Keep us posted on any continued progress.

ozarkcanoer


Top
 Profile  
 
 Post subject: ccsvi
PostPosted: Thu May 05, 2011 5:45 pm 
Offline
Family Elder
User avatar

Joined: Thu Dec 03, 2009 4:00 pm
Posts: 1233
Location: south western pa.
i am glad you had some immediate improvements. keep healing and improving.


Top
 Profile  
 
 Post subject: Re: My turn!
PostPosted: Thu May 05, 2011 8:42 pm 
Offline
Family Elder
User avatar

Joined: Tue Aug 04, 2009 3:00 pm
Posts: 445
Location: colorado
Mathd wrote:
Now I got a flu, so every muscle of my body is hurting, but even with that I feel better than before


Congrats Mathd! much healing in the future....

I hate to keep dwelling on this, but A LOT of people are reporting flu symptoms right after the procedure. I was really sick afterwards. Not to hijack your thread, but I wonder what's behind this..?


Top
 Profile  
 
 Post subject:
PostPosted: Thu May 05, 2011 8:56 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
From what LymeNurse has been suggesting, it could be a flood of whatever bad stuff/toxins have built up in the brain that have been 'liberated' as well by the improved blood flow. Or it could be undiagnosed Lyme and a Herx response! That might be a little more out there. I always thought it was a result of travelling and planes and being exposed to exotic (NY) viruses but I do hear a lot of reports.

When I went to Brooklyn for treatment, every other member of my family came down with a bad cold except for me!!


Top
 Profile  
 
 Post subject:
PostPosted: Fri May 06, 2011 7:21 am 
Offline
Family Elder
User avatar

Joined: Fri Nov 13, 2009 4:00 pm
Posts: 194
Wow, that is wonderful!!
About the flu symptoms, flu is always an immune reaction to get the body rid of toxins... NOW, remember guys!!! remember your first MS flare up, don;t you remember that few weeks before your had a long flu?!! Don't you remember if you have been RRMS, that every relapse started with a flu? That is how it worked with me... and then, in between relpases, I would symply never get sick with normal colds... maybe that's because my immune system was turned off...
I am not saying flu causes relapse, I am just thinking MAYBE MS is really a caused by a pathogen that the immune system is trying to fight and with the CCSVI procedure, more blood is flowing in so more immune cells can go attack whatever is causing the veins to block...
Keep searching guys, TIMS may have the Nobel prize before those big labs still ooking for answers...


Top
 Profile  
 
 Post subject:
PostPosted: Fri May 06, 2011 1:15 pm 
Offline
Family Elder
User avatar

Joined: Wed Mar 17, 2010 4:00 pm
Posts: 2562
Location: Kanata, Ontario, Canada
Oh, no! That would mean: CCSVI is a cause of auto-immunity. No, it can't be true. Slow blood flow? Immune cells having a hard time getting around and being kept busy cleaning up apoptosis messes? Apoptosis messes all over the place on account of low oxygen levels? Quick. Get out the blinkers. I hear nothing. I see nothing. Triple blind me, hurry!

BTW congratulations on getting your veins freed up, and I wish you every success in recovery from your symptoms. Flu-like, huh? I sure remember *that* from my interferon days.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience


Top
 Profile  
 
 Post subject:
PostPosted: Fri May 06, 2011 1:43 pm 
Offline
Family Elder

Joined: Mon Sep 28, 2009 3:00 pm
Posts: 148
Think it could have something to do with interferon? Isn't this a natural substance in the body? It's probably no coincidence that treating MS with interferon also causes flu-like symptoms. :?


Top
 Profile  
 
 Post subject:
PostPosted: Fri May 06, 2011 6:49 pm 
Offline
Family Elder

Joined: Thu Apr 17, 2008 3:00 pm
Posts: 253
Location: Michigan
Mathd - I'm thrilled for your healing! I, too, got sick after my procedure....I tried to look at it as my body forcing me to rest and drink fluids. Positive healing energy is being sent your way!


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 12 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. My Turn!

[ Go to pageGo to page: 1, 2, 3 ]

magoo

35

3601

Sun Oct 18, 2009 12:02 pm

CRHInv View the latest post

There are no new unread posts for this topic. Randi's Turn

[ Go to pageGo to page: 1, 2, 3 ]

Arcee

42

4949

Tue Jul 21, 2009 6:27 am

bestadmom View the latest post

There are no new unread posts for this topic. Akaheather's Turn

[ Go to pageGo to page: 1, 2, 3, 4 ]

akaheather

45

5116

Fri Jan 29, 2010 9:45 pm

Cece View the latest post

There are no new unread posts for this topic. Cece's turn

[ Go to pageGo to page: 1 ... 46, 47, 48 ]

Cece

719

83797

Fri Feb 08, 2013 9:56 am

Anonymoose View the latest post

There are no new unread posts for this topic. Fast turn around for Dake!

prof8

9

1413

Wed Aug 05, 2009 6:24 pm

prof8 View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: