My turn!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

My turn!

Postby Mathd » Thu May 05, 2011 3:07 pm

Last friday it was my turn, with Dr Sclafani.
I had blocages in Left Jugular, Azygos(18mm big!) and Illiac,

The day after, the fatigue was gone, and I already had less spasticity in my legs.
since I didnt have any headaches too.

Now I got a flu, so every muscle of my body is hurting, but even with that I feel better than before

Thanks to Dr Sclafani and his team at AAC.
User avatar
Mathd
Family Member
 
Posts: 58
Joined: Mon Mar 08, 2010 4:00 pm
Location: Gatineau, QC, CA

Advertisement

Postby Cece » Thu May 05, 2011 4:21 pm

Keep healing, Mathd!!
Cece
Family Elder
 
Posts: 8957
Joined: Mon Jan 04, 2010 4:00 pm

Postby bluesky63 » Thu May 05, 2011 5:04 pm

I'm so excited for you! Congrats on finding RELIEF from symptoms already! But I'm so sorry you now have the flu. I hope you have a good support system. Make sure you rest, stay well hydrated, and take care of yourself! :-) Are you in New York?
User avatar
bluesky63
Family Elder
 
Posts: 440
Joined: Mon Apr 18, 2005 3:00 pm

ANOTHER flu/cold, etc...!!??

Postby codefellow » Thu May 05, 2011 5:37 pm

Just a a curiosity, maybe someone could do a poll to see how many people had the treatment and did/did not get sick soon afterward.
User avatar
codefellow
Family Elder
 
Posts: 120
Joined: Tue Nov 18, 2008 4:00 pm

Postby ozarkcanoer » Thu May 05, 2011 5:38 pm

I'm happy that things are working out so well for you, MathD !!! Keep us posted on any continued progress.

ozarkcanoer
User avatar
ozarkcanoer
Family Elder
 
Posts: 1273
Joined: Thu Oct 15, 2009 3:00 pm
Location: St. Louis, Missouri

ccsvi

Postby blossom » Thu May 05, 2011 5:45 pm

i am glad you had some immediate improvements. keep healing and improving.
User avatar
blossom
Family Elder
 
Posts: 1328
Joined: Thu Dec 03, 2009 4:00 pm
Location: south western pa.

Re: My turn!

Postby ikulo » Thu May 05, 2011 8:42 pm

Mathd wrote:Now I got a flu, so every muscle of my body is hurting, but even with that I feel better than before


Congrats Mathd! much healing in the future....

I hate to keep dwelling on this, but A LOT of people are reporting flu symptoms right after the procedure. I was really sick afterwards. Not to hijack your thread, but I wonder what's behind this..?
User avatar
ikulo
Family Elder
 
Posts: 445
Joined: Tue Aug 04, 2009 3:00 pm
Location: colorado

Postby Cece » Thu May 05, 2011 8:56 pm

From what LymeNurse has been suggesting, it could be a flood of whatever bad stuff/toxins have built up in the brain that have been 'liberated' as well by the improved blood flow. Or it could be undiagnosed Lyme and a Herx response! That might be a little more out there. I always thought it was a result of travelling and planes and being exposed to exotic (NY) viruses but I do hear a lot of reports.

When I went to Brooklyn for treatment, every other member of my family came down with a bad cold except for me!!
Cece
Family Elder
 
Posts: 8957
Joined: Mon Jan 04, 2010 4:00 pm

Postby Filmmaker » Fri May 06, 2011 7:21 am

Wow, that is wonderful!!
About the flu symptoms, flu is always an immune reaction to get the body rid of toxins... NOW, remember guys!!! remember your first MS flare up, don;t you remember that few weeks before your had a long flu?!! Don't you remember if you have been RRMS, that every relapse started with a flu? That is how it worked with me... and then, in between relpases, I would symply never get sick with normal colds... maybe that's because my immune system was turned off...
I am not saying flu causes relapse, I am just thinking MAYBE MS is really a caused by a pathogen that the immune system is trying to fight and with the CCSVI procedure, more blood is flowing in so more immune cells can go attack whatever is causing the veins to block...
Keep searching guys, TIMS may have the Nobel prize before those big labs still ooking for answers...
User avatar
Filmmaker
Family Elder
 
Posts: 194
Joined: Fri Nov 13, 2009 4:00 pm

Postby 1eye » Fri May 06, 2011 1:15 pm

Oh, no! That would mean: CCSVI is a cause of auto-immunity. No, it can't be true. Slow blood flow? Immune cells having a hard time getting around and being kept busy cleaning up apoptosis messes? Apoptosis messes all over the place on account of low oxygen levels? Quick. Get out the blinkers. I hear nothing. I see nothing. Triple blind me, hurry!

BTW congratulations on getting your veins freed up, and I wish you every success in recovery from your symptoms. Flu-like, huh? I sure remember *that* from my interferon days.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2852
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby Shannon » Fri May 06, 2011 1:43 pm

Think it could have something to do with interferon? Isn't this a natural substance in the body? It's probably no coincidence that treating MS with interferon also causes flu-like symptoms. :?
Shannon
Family Elder
 
Posts: 148
Joined: Mon Sep 28, 2009 3:00 pm

Postby newlywed4ever » Fri May 06, 2011 6:49 pm

Mathd - I'm thrilled for your healing! I, too, got sick after my procedure....I tried to look at it as my body forcing me to rest and drink fluids. Positive healing energy is being sent your way!
newlywed4ever
Family Elder
 
Posts: 255
Joined: Thu Apr 17, 2008 3:00 pm
Location: Michigan


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users