Just an idea but, the tie in to females patients doing well during pregnancy and lactation may have to do with the impact of hormones on mesenchymal tissue.
Mesenchymal tissue according to the resereacger Dr Lee is what the tissue type is of the venous anomalies in CCSVI.
Mesenchymal tissue demonstrates characteristics when stimulated with female hormones ( it's just like the vaginal walls it becomes "stretchy" with more give and not rigid and unyielding. )
Combine this with the additional blood supply - the blood volume is very much greater during pregnancy
And these 2 things could protect you from the CCSVI from becoming worse during that time. Veins are more relaxed, flow may be better.
After birth and lactation the tissue would lose the signal from the hormone
level dropping, the blood volume goes back to normal and the environment than CCSVI creates can again cause hypoxemia and starvation of brain
tissue, which causes inflammation which leads to symptoms a few months after. This attack a few months after pregnancy or lactation is frequently referred to in studies.
Now this is not tested, yet, but it's at least plausible.
It would be interesting to study this.
Cat (Catherine Somerville on FB)
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-