Court's Liberation - 2 Week Update (new vids)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Johnnymac » Sun May 15, 2011 12:33 pm

Hi bill, we too are awaiting the actual report in the mail, I'd be interested to see if there are any similarities.

9 days post procedure and the pain and discomfort are all gone. Walking isn't any better but it seems like she is getting better in all the other areas. Simple tasks do not now wear her out (showering, starting a load of laundry, etc), she can sleep on her side for long periods of time with no pain in her legs, bladder is more under control, she's more alert. She used to have very regular recurring dreams where there was a pain going across the middle of her feet, has not had one since. When she is laying down, she says she can feel the blood in her neck pulsating, I assume lack of flow for who knows how many years it must feel different to have it flowing again.

She feels like she is getting a little better for the first time ever, it's been a slow decline for her the last 5 years, trying to temper excitement but were very happy right now with her decision to get this done.

Thank you again Dr Sclafani!!!
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Postby WeWillBeatMS » Sun May 15, 2011 1:14 pm

Great to hear she continues to do better.

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Postby Johnnymac » Thu May 19, 2011 11:30 am

Hey everyone, Courtney and I decided to start tracking how she was feeling daily with each of her symptoms, along with the amount of exercise and stretching she is doing. Wanted to share what we were doing not so much for folks to follow along, but to perhaps give you an idea on tracking your own post procedure progress or lack there of. Nearly 2 weeks out with mostly subtle changes each day we thought it would be more telling just to accurately reflect how she was feeling each day and then have some historical trend lines to look at.

https://spreadsheets.google.com/ccc?key ... y=CKy76o0P
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Postby Johnnymac » Sat May 21, 2011 10:14 am

Two weeks and a day post procedure and Courtney continues to get a little better. Her walking and balance are starting to improve in the mornings. Blog updated with new videos.

http://ourmsjourney.blogspot.com/
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Postby Cece » Sat May 21, 2011 1:16 pm

Johnnymac wrote: Her walking and balance are starting to improve in the mornings.

Great news!!
Really glad she got improvements.
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