CCSVI found in healthy controls- a plausible explanation

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI found in healthy controls- a plausible explanation

Postby MegansMom » Sun May 08, 2011 4:49 pm

Last year in the Spring of 2010 my daughter had no MS symptoms. In fact last May she went on a cruise with her girlfriends and had a ball. She danced, swam and "partyed" hard I am sure.

In June she was stricken with MS Symptoms. They came , and for the most part there was no "attack", they came and stayed.

In July she sought physician's care and by August she had been diagnosed with MS. She had displayed 12 symptoms by then . Had brain and a spinal lesion and had a positive Lumbar puncture. In August she had MS.

In Sept she got a venogram , had CCSVI diagnosed and had 2 vessels angioplastied. The bulk of her symptoms left within a day. Some lingered and waned over the next 3 months.

Last May 2010 she could have been a healthy control.
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MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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Postby joge » Mon May 09, 2011 2:11 am

Great point!

What's ' healthy ' when you're in the controlgroup and have narrowings of your IJV's and/or AZY.

Maybe/probably your in for one of the ccsvi related deseases. MS is one of the options.
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Re: CCSVI found in healthy controls- a plausible explanation

Postby griff » Mon May 09, 2011 3:32 am

MegansMom wrote:Last May 2010 she could have been a healthy control.


Last may, did she have laesios in her brain and spinal cord? Did she have negative results from lumbar punctrure? Did she have negative neurological results? As for MS, just because someone has no symptoms at a certain point of time it does not mean that she/he is healthy and has no MS.
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Postby MegansMom » Mon May 09, 2011 3:58 am

That's my point. IN MAY she was a healthy control candidate.

She didn't have symptoms until June. In July she went to the Drs. In August she had 3 lesions ( 2 brain and 1 spinal) and tested positive for Oligoclonal bodies.

In Sept she had CCSVI venogram and a completely occluded Azygos and a partially blocked L IJV.
Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
User avatar
MegansMom
Family Elder
 
Posts: 200
Joined: Sun Aug 22, 2010 2:00 pm
Location: Central FL ( near Ocala)


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