Like what Cece said, there has been tremendous improvements in treatment as knowledge of this beast (CCSVI) has been gained.
I have been hearing this over and over. I'm not sure I agree. There has been lots of "experience" gained in the past year, but I don't think there are any significant "improvements".
Sure there are doctors using techniques that they believe are better than what was used previously, but they are not necessarily improvements. If they were improvements then we would see improved results. The truth is is that patients are still falling into the 1/3 – 1/3 – 1/3 grouping that they were a year ago. Patients are still unable to maintain their improvements for more than a few months. Sure there are exceptions, but statistically, very little has changed in the past year.
There have been many great ideas proposed in the past year of discovery but to call them improvements is premature. I recommend everyone to listen to Dr. Siskin's interview http://www.youtube.com/watch?v=9MojxHbwqxA&feature=player_embedded
. He is a well respected leader in treating CCSVI and may be the most experienced in the North America. It is clear that he is has made a few changes to his procedures, but not many. I have followed him closely since he started treating CCSVI. My wife was on his waiting list since it began. She was treated by his team late last year. I have nothing but praise for him and his techniques but if you listen to him speak you will see that his procedures have not changed much from when he started.
Then there is Dr. Sclafani who is using IVUS and is focusing on his theory of treating the valves. This is great stuff. It is different, but is it an improvement? He stated in one of his posts that it will be quite a while before we know if his treatment techniques are any better at reducing restenosis.
I am not advocating that pwMS not get treatment. We are very happy that we did. My wife’s improvements were dramatic but only lasted 2 months. We are pioneers and I believe everyone at this point is a pioneer. Have there been some changes in the treatment of CCSVI, yes. Are they improvements, we don’t know.