What was your MS "Trigger"

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Asher » Wed May 11, 2011 2:47 am

Thanks for your kind advice, apparently chat is all you seem interested in. Do not worry, I will no longer bother anyone. This was my farewell post to what I view as a semi religious forum. Off note, no offense, without a grain of cynicism I know you are a good and kind person. Be well.
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Postby Algis » Wed May 11, 2011 3:19 am

If "stress" is a trigger for MS; why then there isn't any surge of MS in South-Sudan, East Nigeria, Burma, Afghanistan, Kazakhstan (to only name few).

Or is it "stress" in the Western-world cocoon - Like some kids are "stressed" because they will not serve chocolate for dessert next week at school?

That is pretty subjective.

"My" MS came silently; no real trigger... A limp, more, second leg, then gradually fatigue, then a cane, a walker, a wheelchair.... an electric wheelchair, one arm refuse to move, second one getting tired... Waiting for its next move...
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Postby civickiller » Wed May 11, 2011 9:54 am

Stress isn't a cause for MS, just a trigger
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Postby Johnson » Wed May 11, 2011 6:07 pm

Algis wrote:If "stress" is a trigger for MS; why then there isn't any surge of MS in South-Sudan, East Nigeria, Burma, Afghanistan, Kazakhstan (to only name few).

Or is it "stress" in the Western-world cocoon - Like some kids are "stressed" because they will not serve chocolate for dessert next week at school?

That is pretty subjective.

"My" MS came silently; no real trigger... A limp, more, second leg, then gradually fatigue, then a cane, a walker, a wheelchair.... an electric wheelchair, one arm refuse to move, second one getting tired... Waiting for its next move...


That is an observation that the neuro I see made. He said that there was not an increase in reported exacerbations in Lebanon when it was being shelled, and such. I suggested that people under siege are not likely to be going to see their neurologist. I wonder if it is that that you suggest about the Western cocoon. We are more likely to complain about our circumstances because of our circumstances. Afghans or Sudanese peasants are unlikely to report to, or be observed by competent neurologists. Most cases of any dis-ease are probably unreported.

I'm just going out on a limb, but stress causes release of adrenalin/cortisol into the blood stream, and that shite is poisonous in large, continuous dosage. I can imagine that it might disrupt the endothelium, aggravating an already underlying condition, and cascades into the first symptoms. Then the metabolic balance is so precarious, we get relapsing/remitting dis-ease.

We need "good" stress - like being surprised, or threatened in the moment - that is actually healthy, but chronic stress makes a mess of us.

I don't know about PPMS. It would be interesting to look at physical and mental constitutions before "MS", and what flavour of it develops. I was generally robust, and naturally lean and athletic, but very "high-strung". My body is now emaciated, but I'm working on the excitability thing...
My name is not really Johnson. MSed up since 1993
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Postby Algis » Thu May 12, 2011 2:53 am

I hear you Johnson; we are close but it is not exactly what I had in mind.

It makes me think of a relation with "depression", "nervous breakdown" and the likes. I wonder if the modern life is not just "too much" for some people and as they just do not know how to deal with the situation; they roll down the slope.

In the above-mentioned countries / situation the basic instinct of survival might overwrite any envy of stress/depression/etc...

Maybe because going to the doctor and say "I am stressed" won't cut it in there.

It is not a critic, but Prozac and the likes have their market in industrialized world. That is a pattern for me.
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Postby defneamber » Thu May 12, 2011 8:50 am

My first event happened after serious sun poisoning. I was very burnt, and very sick afterwards for a week and then i woke up one morning and my whole left side was numb, i could hardly walk.
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ccsvi

Postby blossom » Thu May 12, 2011 8:53 pm

i'm wondering that for some of us anyway if there would be the factor of having something say like the lymes parasite that can lay dorminate for yrs. or some yet to be discovered thing or say the herpes virus that is found in a lot of people with ms and who knows what. but, the fact that the trauma could activate this and it raises it's ugly head. not to forget that a physical trauma in some can really screw up the spine where all these very important nerves and veins and spinal fluid is.

we are all having these symptoms they call ms but i still believe in all the sameness there will be differences.

that's why no stone can be unturned.
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Re: ccsvi

Postby civickiller » Thu May 12, 2011 11:47 pm

blossom wrote:not to forget that a physical trauma in some can really screw up the spine where all these very important nerves and veins and spinal fluid is.


that's why every person should see a Upper Cervical Care Dr. and if needed, can hopefully feel the same benefit if not more then what I felt
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